General
New record dedicated to ‘those affected by SUDEP’
Band member Scott Hardcastle lost his sister Samantha to SUDEP in 2004.
SUDEP Action
News
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GeneralValproate; guilty until proven innocent?
Why UK rules on a life-saving epilepsy medicine don’t make sense
FundraisingMaisie Tothill Ball brings friends and family together
Purple-themed Ball held in memory of Maisie Tothill.
GeneralInquest held into death of Jacob Sunley
The inquest found that Jacob died of natural causes as a result of SUDEP.
FundraisingBig Purple Quiz support for the Charlie Card
Quiz night supports Charlie Cards in memory of Charlie Marriage.
GeneralPaul Warren joins SUDEP Action Board
New trustee Paul lost his sister to SUDEP in 2019.
GeneralForever Alive: Natalia’s story told on London stage
Lilianna performs play in memory of Natalia.
GeneralHow a letter to his late brother grew into a worldwide mission
Fraser Morton’s brother died of SUDEP, aged 19. Now. Fraser wants to reshape how epilepsy is understood.
Fundraising“It took losing Lucy for us to even learn about SUDEP”
Over £7,000 raised in memory of Lucy Grant in Mighty Stride Kiltwalk.
GeneralHealth Board given 28 days to clarify SUDEP risk plans
Neither Megan nor her family were properly informed of her risk of death.
For one-to-one support after an epilepsy death contact our support team today
We provide the only support line for people bereaved by an epilepsy death and offer access to qualified counselling. Our dedicated support team has a special interest in, and understanding of, sudden and traumatic death.
