SUDEP Action

Making every epilepsy death count
Call us now on 01235 772850
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Support Services

If you have been bereaved by an epilepsy-related death, please contact us on 01235 772852 or email [email protected]

Taking Care at Christmas 2020

Taking care at Christmas

Our opening hours, support and advice in the lead up to Christmas

Lives Cut Short

Latest research - Lives Cut Short

Learn more about the report on urgent measures to tackle deaths in epilepsy and support the bereaved during the COVID-19 pandemic


What is SUDEP?

Sudden Unexpected Death in Epilepsy (SUDEP) is when a person with epilepsy dies suddenly and prematurely and no reason for death is found.

Light Up the Sky in Memory

This November and December SUDEP Action asks you to join us to Light Up the Sky with love and with memories, as a way of remembering those we have lost and supporting others together.

A MuchLoved Tribute

A MuchLoved tribute allows for pictures, thoughts and memories to be shared. You can light candles or give a virtual gift such as flowers. There are options to raise funds or donate if you wish to. 

Zoom Coffee Club

Zoom Coffee Clubs

Our next Zoom Coffee Club for those bereaved by epilepsy will be on Wednesday 16 December at 1.00pm. If you would like to join us, please register by Wednesday 9 December 2020.

My Story

My Story - is an important and powerful way for you to join our campaign. As ‘the voice of the bereaved’ for over 20 years, we use information shared with us to good purpose. We are very experienced in supporting those who wish to share their stories and who find it helpful to know that they are part of the ‘voice.’  


Welcome to SUDEP Action

Welcome to SUDEP Action

There are at least three epilepsy-related deaths a day in the UK. 

SUDEP Action is dedicated to raising awareness of epilepsy risks and tackling epilepsy deaths including Sudden Unexpected Death in Epilepsy. We are the only UK charity specialised in supporting and involving people bereaved by epilepsy. 

Our services include bereavement support, counselling, help with understanding the inquest process and in collaboration with UK research teams, the involvement of bereaved families and professionals in research through the Epilepsy Deaths Register. If you have been affected by an epilepsy death, please contact our support team on 01235 772852.

SUDEP and Seizure Safety Checklist