SUDEP Action

Making every epilepsy death count
Call us now on 01235 772850

Project to take the Checklist to Ireland!

SUDEP Action has begun work with Epilepsy Ireland to introduce the SUDEP and Seizure Safety Checklist to Ireland.

Going purple in Jess's memory

Crochet purple hearts will be sent to every member of the Scottish Parliament for them to wear on Purple Day - in memory of Jess Johnston, who died of epilepsy in 2022. 

An epileptic Abroad by Ellie Goodwin

What's it like to travel with epilepsy? Read Ellie's blog, sharing her own experiences. 

Lives are being endangered by ep meds shortages

SUDEP Action is one of four charities calling on the Government to fix the medicines supply chain problems that are putting lives at risk. 

We invite you to share your story

Your experience has the power to make an impact and help SUDEP Action to break down barriers for change. Contact us to learn more.

Online Epilepsy Memorial Day on 1 May

Join us on 1 May for Online Epilepsy Memorial Day - to remember and leave tributes to all those we have lost due to epilepsy. 


Welcome to SUDEP Action

Welcome to SUDEP Action

There are at least three epilepsy-related deaths a day in the UK. 

SUDEP Action is dedicated to raising awareness of epilepsy risks and tackling epilepsy deaths including Sudden Unexpected Death in Epilepsy. We are the only UK charity specialised in supporting and involving people bereaved by epilepsy. 

Our services include bereavement support, counselling, help with understanding the inquest process and in collaboration with UK research teams, the involvement of bereaved families and professionals in research through the Epilepsy Deaths Register.

If you have been affected by an epilepsy death, please contact our support team on 01235 772852.

SUDEP and Seizure Safety Checklist

Latest news

An Epileptic Abroad: By Ellie Goodwin

26th Mar 2024

Thanks to Ellie for writing this blog specifically for SUDEP Action for Purple Day 2024