SUDEP Action

Making every epilepsy death count
Call us now on 01235 772850

Review finds death of Clive Treacey 'potentially avoidable'

Elaine Clarke says her brother was ‘failed in life and failed in death’ as a national review has found that his death was ‘potentially avoidable’.

seek the truth

What is SUDEP?

Sudden Unexpected Death in Epilepsy (SUDEP) is when a person with epilepsy dies suddenly and prematurely and no reason for death is found.

We invite you to share your story

Your experience has the power to make an impact and help SUDEP Action to break down barriers for change. Contact us to learn more.

Remember someone in our Cherry Blossom Garden

Our Cherry Blossom Garden has been specially designed to offer you somewhere to remember the life of someone you have lost. This means that you can leave a lasting tribute to someone which family and friends can contribute to. 

EDR

Epilepsy Deaths Register

The Epilepsy Deaths Register is a safe and secure single point for reporting all epilepsy-related deaths.We urgently require your help to gather vital information and research on deaths in people with, or suspected to have had, epilepsy.

Coffee Clubs for those bereaved by epilepsy

SUDEP Action Coffee Club meetings are in areas all around the UK, throughout the year. If you are interested in attending a Coffee Club meeting in your area, please email [email protected] or call 01235 772850.

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Welcome to SUDEP Action

Welcome to SUDEP Action

There are at least three epilepsy-related deaths a day in the UK. 

SUDEP Action is dedicated to raising awareness of epilepsy risks and tackling epilepsy deaths including Sudden Unexpected Death in Epilepsy. We are the only UK charity specialised in supporting and involving people bereaved by epilepsy. 

Our services include bereavement support, counselling, help with understanding the inquest process and in collaboration with UK research teams, the involvement of bereaved families and professionals in research through the Epilepsy Deaths Register. If you have been affected by an epilepsy death, please contact our support team on 01235 772852.

SUDEP and Seizure Safety Checklist