SUDEP Action

Making every epilepsy death count
Call us now on 01235 772850

EpSMon app scoops Healthcare IT Award at Health Business Awards 2016

EpSMon, the Epilepsy Self-Monitoring app developed to help people manage their epilepsy risks, has won a Healthcare IT Award at the Health Business Awards. 

Taking Care at Christmas

Christmas is not a merry time for everyone, and it can ignite painful memories and reminders of what you have lost.  Although everyday can be difficult, there are certain times of the year that can be particularly difficult, and the Christmas season can be one of them. 

Epilepsy self-monitoring app joins the NHS Innovation Accelerator programme

An app designed and developed in the South West and which is benefiting the lives of thousands of people with epilepsy, EpSMon, is 

My Story

My Story - is an important and powerful way for you to join our campaign. As ‘the voice of the bereaved’ for over 20 years, we use information shared with us to good purpose. We are very experienced in supporting those who wish to share their stories and who find it helpful to know that they are part of the ‘voice.’  

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Welcome to SUDEP Action

Welcome to SUDEP Action

There are at least three epilepsy-related deaths a day in the UK. 

SUDEP Action is dedicated to raising awareness of epilepsy risks and tackling epilepsy deaths including Sudden Unexpected Death in Epilepsy. We are the only UK charity specialised in supporting and involving people bereaved by epilepsy. 

Our services include bereavement support, counselling, help with understanding the inquest process and in collaboration with UK research teams, the involvement of bereaved families and professionals in research through the Epilepsy Deaths Register. If you have been affected by an epilepsy death, please contact our support team on 01235 772852.

SUDEP and Seizure Safety Checklist