SUDEP Action

Making every epilepsy death count
Call us now on 01235 772850
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Support Services

If you have been bereaved by an epilepsy-related death, please contact us on 01235 772852 or email [email protected]

Lives Cut Short

Latest research - Lives Cut Short

Learn more about the report on urgent measures to tackle deaths in epilepsy and support the bereaved during the COVID-19 pandemic

Facts

What is SUDEP?

Sudden Unexpected Death in Epilepsy (SUDEP) is when a person with epilepsy dies suddenly and prematurely and no reason for death is found.

HelpPrevent21

Help Prevent21 Challenge

SUDEP Action are asking you to join us and #HelpPrevent21 by taking part in a positive activity every day for 21 days between 21st January - 21st March. 

A MuchLoved Tribute

A MuchLoved tribute allows for pictures, thoughts and memories to be shared. You can light candles or give a virtual gift such as flowers. There are options to raise funds or donate if you wish to. 

EDR

Epilepsy Deaths Register

Could you help us?Our Epilepsy Deaths Register is an international register that aids research & is a driver for change in our fight against #epilepsy deaths including #SUDEP.

We need your help - COVID-19 research surveys

SUDEP Action are concerned about the impact COVID-19 is having across the epilepsy and bereaved communities - leading to increasing risks, worsening wellbeing and more epilepsy-related deaths. Find out more about you can help our 3 research projects to help save lives.

My Story

My Story - is an important and powerful way for you to join our campaign. As ‘the voice of the bereaved’ for over 20 years, we use information shared with us to good purpose. We are very experienced in supporting those who wish to share their stories and who find it helpful to know that they are part of the ‘voice.’  

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Welcome to SUDEP Action

Welcome to SUDEP Action

There are at least three epilepsy-related deaths a day in the UK. 

SUDEP Action is dedicated to raising awareness of epilepsy risks and tackling epilepsy deaths including Sudden Unexpected Death in Epilepsy. We are the only UK charity specialised in supporting and involving people bereaved by epilepsy. 

Our services include bereavement support, counselling, help with understanding the inquest process and in collaboration with UK research teams, the involvement of bereaved families and professionals in research through the Epilepsy Deaths Register. If you have been affected by an epilepsy death, please contact our support team on 01235 772852.

SUDEP and Seizure Safety Checklist