SUDEP Action

Making every epilepsy death count
Call us now on 01235 772850
Supporter Cover image

Support Services

If you have been bereaved by an epilepsy-related death, please contact us on 01235 772852 or email [email protected]

Lives Cut Short

Latest research - Lives Cut Short

Learn more about the report on urgent measures to tackle deaths in epilepsy and support the bereaved during the COVID-19 pandemic

Facts

What is SUDEP?

Sudden Unexpected Death in Epilepsy (SUDEP) is when a person with epilepsy dies suddenly and prematurely and no reason for death is found.

My Story

We invite you to share your story

Your experience has the power to make an impact and help SUDEP Action to break down barriers for change. Contact us to learn more.

A MuchLoved Tribute

A MuchLoved tribute allows for pictures, thoughts and memories to be shared. You can light candles or give a virtual gift such as flowers. There are options to raise funds or donate if you wish to. 

Partners Coffee Club

Zoom Coffee Clubs

Our next Zoom Coffee Club for partners bereaved by epilepsy will be on Tuesday 27 April at 1pm.  If you would like to join us, please register by Wednesday 21 April 2021.

EDR

Epilepsy Deaths Register

During the current pandemic, epilepsy risk is changing - services are stretched and, tragically, deaths are still happening.The Epilepsy Deaths Register is a trusted place for learning from deaths and, now more than ever, sharing your experiences can inspire the change that can help save lives.

We need your help - COVID-19 research surveys

We are committed to making sure every voice is heard. If you're interested in contributing to our research on COVID-19 and #epilepsy, take a look at our international research projects.

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Welcome to SUDEP Action

Welcome to SUDEP Action

There are at least three epilepsy-related deaths a day in the UK. 

SUDEP Action is dedicated to raising awareness of epilepsy risks and tackling epilepsy deaths including Sudden Unexpected Death in Epilepsy. We are the only UK charity specialised in supporting and involving people bereaved by epilepsy. 

Our services include bereavement support, counselling, help with understanding the inquest process and in collaboration with UK research teams, the involvement of bereaved families and professionals in research through the Epilepsy Deaths Register. If you have been affected by an epilepsy death, please contact our support team on 01235 772852.

SUDEP and Seizure Safety Checklist