SUDEP Action aspires to stop preventable deaths from SUDEP Action aspires
to stop preventable deaths from epilepsy

We are the only UK charity working alongside those who have lost loved ones to an epilepsy-related death

What is SUDEP? How we can help
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About us

The only UK charity supporting and working alongside those whose loved ones have died suddenly from an epilepsy-related death.

SUDEP stands for Sudden Unexpected Death in Epilepsy. It’s when someone with epilepsy dies without warning and the post-mortem fails to establish any other cause of death.

Epilepsy safety

Latest news

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Find out what’s been happening within the charity in recent months and read more about our work and the projects we’re involved in.

“SUDEP Action shone a light on the path I needed to walk. When the numbness wears off, people have disappeared. SUDEP Action stays by my side”

SUDEP Action is leading the fight to stop epilepsy-related deaths. It’s a charity with a genuine commitment to people – thoughtful and compassionate, but proactive and ready to fight for those who need someone in their corner.

Find out more

Our events & campaigns

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Our events are important because they bring people together. 
And together we are stronger. 

My Story

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Every story matters. Because every life matters.

EpSMon app

A digital tool for reducing risks

Living with epilepsy is not easy but EpSMon can help you understand your own personal epilepsy risks so you can make informed decisions about when to book GP appointments and review your care plan. Our award-winning EpSMon app is based on the latest epilepsy research and completely free.

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For one-to-one support after an epilepsy death contact us today

We provide support to people bereaved due to epilepsy and offer access to dedicated specialists and counselling services.

Our services are tailored around you

Get Support

We keep learning from research to help save lives

Epilepsy Risks

With you on our side, we can make a difference

Get Involved

Has someone close to you died because of epilepsy?

About SUDEP

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