SUDEP Action

Making every epilepsy death count
Call us now on 01235 772850
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Support Services

If you have been bereaved by an epilepsy-related death, please contact us on 01235 772852 or email [email protected]

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SUDEP Action Day

Whether it's sharing our messaging, your experiences, taking part in our special 5k event, or remembering a loved one - we encourage you take part this 23 October.


What is SUDEP?

Sudden Unexpected Death in Epilepsy (SUDEP) is when a person with epilepsy dies suddenly and prematurely and no reason for death is found.

A gift in your Will

A gift in your Will helps SUDEP Action to continue to support those bereaved by epilepsy and enables those living with epilepsy to access potentially life-saving tools and information.

A MuchLoved Tribute

A MuchLoved tribute allows for pictures, thoughts and memories to be shared. You can light candles or give a virtual gift such as flowers. There are options to raise funds or donate if you wish to. 

Siblings Virtual Coffee Clubs

Our next Zoom Coffee Club for siblings bereaved by epilepsy will be on Wednesday 30 September at 1pm. 

We need your help - COVID-19 research surveys

SUDEP Action are concerned about the impact COVID-19 is having across the epilepsy and bereaved communities - leading to increasing risks, worsening wellbeing and more epilepsy-related deaths. Find out more about you can help our 3 research projects to help save lives.

My Story

My Story - is an important and powerful way for you to join our campaign. As ‘the voice of the bereaved’ for over 20 years, we use information shared with us to good purpose. We are very experienced in supporting those who wish to share their stories and who find it helpful to know that they are part of the ‘voice.’  


Welcome to SUDEP Action

Welcome to SUDEP Action

There are at least three epilepsy-related deaths a day in the UK. 

SUDEP Action is dedicated to raising awareness of epilepsy risks and tackling epilepsy deaths including Sudden Unexpected Death in Epilepsy. We are the only UK charity specialised in supporting and involving people bereaved by epilepsy. 

Our services include bereavement support, counselling, help with understanding the inquest process and in collaboration with UK research teams, the involvement of bereaved families and professionals in research through the Epilepsy Deaths Register. If you have been affected by an epilepsy death, please contact our support team on 01235 772852.

SUDEP and Seizure Safety Checklist