SUDEP Action

Making every epilepsy death count
Call us now on 01235 772850
Supporter Cover image

Support Services

If you have been bereaved by an epilepsy-related death, please contact us on 01235 772852 or email [email protected]

Memorial Service 2020 Cherry Blossom

Memorial Service 2020 event POSTPONED

Our Memorial Service, due tol be held on Saturday 16 May 2020, has now been postponed. 

EB Journal Cover

International journal publishes UK research on tackling epilepsy deaths

Key research from SUDEP Action’s landmark Prevent21 Summit, has been published in a leading international epilepsy journal, Epilepsy and Behavior

Facts

What is SUDEP?

Sudden Unexpected Death in Epilepsy (SUDEP) is when a person with epilepsy dies suddenly and prematurely and no reason for death is found.

My Story

My Story - is an important and powerful way for you to join our campaign. As ‘the voice of the bereaved’ for over 20 years, we use information shared with us to good purpose. We are very experienced in supporting those who wish to share their stories and who find it helpful to know that they are part of the ‘voice.’  

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Welcome to SUDEP Action

Welcome to SUDEP Action

There are at least three epilepsy-related deaths a day in the UK. 

SUDEP Action is dedicated to raising awareness of epilepsy risks and tackling epilepsy deaths including Sudden Unexpected Death in Epilepsy. We are the only UK charity specialised in supporting and involving people bereaved by epilepsy. 

Our services include bereavement support, counselling, help with understanding the inquest process and in collaboration with UK research teams, the involvement of bereaved families and professionals in research through the Epilepsy Deaths Register. If you have been affected by an epilepsy death, please contact our support team on 01235 772852.

SUDEP and Seizure Safety Checklist