SUDEP Action

Making every epilepsy death count
Call us now on 01235 772850
Supporter Cover image

Support Services

If you have been bereaved by an epilepsy-related death, please contact us on 01235 772852 or email


SUDEP Action National Conference

Come and hear all about what SUDEP Action have been working on and how YOUR support has helped. Friday 17-19 Sunday May 2019, Leamington Spa

Clinicians express concerns over medication shortages affecting patients

Epilepsy nurses are already experiencing problems with supplies and accessing certain medications.

Prevent21 Summit

Prevent21 Summit - on tackling epilepsy deaths

Our first Summit event will be held this November 2018 in Oxford, with the theme - Time to Listen.

Epilepsy coalition letter published in The Guardian

The Guardian has published a letter that about the dangers of a medication shortage which will pose to those on life saving medications. 


Online Epilepsy Memorial Day

A global opportunity to remember all those who have died from epilepsy, across social media. 

My Story

My Story - is an important and powerful way for you to join our campaign. As ‘the voice of the bereaved’ for over 20 years, we use information shared with us to good purpose. We are very experienced in supporting those who wish to share their stories and who find it helpful to know that they are part of the ‘voice.’  


Welcome to SUDEP Action

Welcome to SUDEP Action

There are at least three epilepsy-related deaths a day in the UK. 

SUDEP Action is dedicated to raising awareness of epilepsy risks and tackling epilepsy deaths including Sudden Unexpected Death in Epilepsy. We are the only UK charity specialised in supporting and involving people bereaved by epilepsy. 

Our services include bereavement support, counselling, help with understanding the inquest process and in collaboration with UK research teams, the involvement of bereaved families and professionals in research through the Epilepsy Deaths Register. If you have been affected by an epilepsy death, please contact our support team on 01235 772852.

SUDEP and Seizure Safety Checklist