SUDEP Action

Making every epilepsy death count
Call us now on 01235 772850

Light Up the Sky in Memory

This November & December, SUDEP Action asks you to join us to Light Up the Sky in Memory, as a way of remembering those we have lost and supporting others together.

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Support Services

If you have been bereaved by an epilepsy-related death, please contact us on 01235 772852 or email [email protected]

seek the truth

What is SUDEP?

Sudden Unexpected Death in Epilepsy (SUDEP) is when a person with epilepsy dies suddenly and prematurely and no reason for death is found.

Lives Cut Short

Latest research - Lives Cut Short

Learn more about the report on urgent measures to tackle deaths in epilepsy and support the bereaved during the COVID-19 pandemic

My Story

We invite you to share your story

Your experience has the power to make an impact and help SUDEP Action to break down barriers for change. Contact us to learn more.

EDR

Epilepsy Deaths Register

The Epilepsy Deaths Register is a safe and secure single point for reporting all epilepsy-related deaths.We urgently require your help to gather vital information on deaths in people with, or suspected to have had, epilepsy.

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Welcome to SUDEP Action

Welcome to SUDEP Action

There are at least three epilepsy-related deaths a day in the UK. 

SUDEP Action is dedicated to raising awareness of epilepsy risks and tackling epilepsy deaths including Sudden Unexpected Death in Epilepsy. We are the only UK charity specialised in supporting and involving people bereaved by epilepsy. 

Our services include bereavement support, counselling, help with understanding the inquest process and in collaboration with UK research teams, the involvement of bereaved families and professionals in research through the Epilepsy Deaths Register. If you have been affected by an epilepsy death, please contact our support team on 01235 772852.

SUDEP and Seizure Safety Checklist