SUDEP Action

Making every epilepsy death count
Call us now on 01235 772850

A legacy at last for Clive

New guidance designed to reduce the epilepsy risks faced by people with learning disabilities has been launched by NHS England and SUDEP Action. 

New sodium valproate guidance: our stance

See our response to the latest MHRA announcement on sodium valproate 

We invite you to share your story

Your experience has the power to make an impact and help SUDEP Action to break down barriers for change. Contact us to learn more.

Take care this Christmas

Christmas can be difficult if you have lost someone close to you. Please remember to take care of yourself and others. 

Light up the Sky this December

Share your pictures, thoughts and memories with others via our 2023 Light Up the Sky in Memory dedication wall.


Welcome to SUDEP Action

Welcome to SUDEP Action

There are at least three epilepsy-related deaths a day in the UK. 

SUDEP Action is dedicated to raising awareness of epilepsy risks and tackling epilepsy deaths including Sudden Unexpected Death in Epilepsy. We are the only UK charity specialised in supporting and involving people bereaved by epilepsy. 

Our services include bereavement support, counselling, help with understanding the inquest process and in collaboration with UK research teams, the involvement of bereaved families and professionals in research through the Epilepsy Deaths Register.

If you have been affected by an epilepsy death, please contact our support team on 01235 772852.

SUDEP and Seizure Safety Checklist