SUDEP Action

Making every epilepsy death count
Call us now on 01235 772850

Please support our Help for Hope pledge!

With a General Election fast approaching on July 4, please ask your prospective candidates to make a commitment to supporting SUDEP Action.

We all need to 'be more Hannah'

Last year our beautiful Hannah died. She was one of those incredibly rare people in life who makes you feel special, heard, understood and loved. When deliberating on a tough decision or trying to plan, we often say ‘Be More Hannah.’ 

New study compares SUDEP risk in UK and Norway

Despite international guidance, SUDEP-related discussions are still not consistently taking place - research finds.  

Colin to exhibit at Royal Academy Summer Show

 Artist Colin Eveleigh says his forthcoming Royal Academy exhibit is inspired by daughter Bella, who died of SUDEP aged just 24. 

We invite you to share your story

Your experience has the power to make an impact and help SUDEP Action to break down barriers for change. Contact us to learn more.

New Topiramate guidance: Policy needs scrutiny

 SUDEP Action is reviewing new MHRA safety guidelines which state topiramate should not be prescribed to women of childbearing age unless the conditions of a Pregnancy Prevention Programme are fulfilled. 


Welcome to SUDEP Action

Welcome to SUDEP Action

There are at least three epilepsy-related deaths a day in the UK. 

SUDEP Action is dedicated to raising awareness of epilepsy risks and tackling epilepsy deaths including Sudden Unexpected Death in Epilepsy. We are the only UK charity specialised in supporting and involving people bereaved by epilepsy. 

Our services include bereavement support, counselling, help with understanding the inquest process and in collaboration with UK research teams, the involvement of bereaved families and professionals in research through the Epilepsy Deaths Register.

If you have been affected by an epilepsy death, please contact our support team on 01235 772852.

SUDEP and Seizure Safety Checklist