SUDEP Action

Making every epilepsy death count
Call us now on 01235 772850

Epilepsy meds will be exempt from Brexit after coalition intervenes

The Sunday Times reports Serious Shortage Protocol for medicines will not apply to epilepsy, after epilepsy coalition intervenes to protect patient safety

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Support Services

If you have been bereaved by an epilepsy-related death, please contact us on 01235 772852 or email


Urgent Government support is needed to tackle epilepsy deaths

 21 epilepsy deaths a week in the UK, of which 42% could be potentially avoidable with improved knowledge & better access to services; it’s time for policy makers to listen.

Prevent21 Summit

Prevent21 Summit - on tackling epilepsy deaths

Our first Summit event will be held this November 2018 in Oxford, with the theme - Time to Listen.



We would like to hear from YOU, about your journey and how you have connected with the charity during the last 21 years.

My Story

My Story - is an important and powerful way for you to join our campaign. As ‘the voice of the bereaved’ for over 20 years, we use information shared with us to good purpose. We are very experienced in supporting those who wish to share their stories and who find it helpful to know that they are part of the ‘voice.’  


Welcome to SUDEP Action

Welcome to SUDEP Action

There are at least three epilepsy-related deaths a day in the UK. 

SUDEP Action is dedicated to raising awareness of epilepsy risks and tackling epilepsy deaths including Sudden Unexpected Death in Epilepsy. We are the only UK charity specialised in supporting and involving people bereaved by epilepsy. 

Our services include bereavement support, counselling, help with understanding the inquest process and in collaboration with UK research teams, the involvement of bereaved families and professionals in research through the Epilepsy Deaths Register. If you have been affected by an epilepsy death, please contact our support team on 01235 772852.

SUDEP and Seizure Safety Checklist