Research, Tools & Education
Past projects
Saving lives
We have been involved in many influential past research projects that have pushed for change, changed clinical practises and understanding and increased knowledge to save lives.
Untold Distress – How did COVID-19 affect epilepsy-related bereavement?
Research paper, January 2023
Impact of the COVID-19 pandemic on people with epilepsy: Findings from the US
Research paper, August 2022
The impact of COVID-19 on epilepsy care (UK healthcare workers)
Research paper, July 2021
Impact of the COVID-19 pandemic on people with epilepsy: Findings from Brazil
Research paper, October 2021
Evaluating risk to people with epilepsy during the COVID-19 pandemic
Research paper, November 2020
Lives Cut Short: Urgent measures to tackle deaths in epilepsy & support the bereaved
Policy report, November 2020
The causes of death in epilepsy: Mortality rates in individuals with epilepsy and causes of death
A systematic review, 2014
Death in the Shadows: A national sentinel clinical audit of epilepsy-related death
National audit, 2001
For one-to-one support after an epilepsy death contact our support team today
We provide the only support line for people bereaved by an epilepsy death and offer access to qualified counselling. Our dedicated support team has a special interest in, and understanding of, sudden and traumatic death.
