About SUDEP Action

Meet the team

  • Chief Executive Officer

    Formerly Deputy CEO, Sammy has worked across the charity’s various departments and platforms over a number of years. She was project lead on the initial development of the award-winning SUDEP & Seizure Safety Checklist and EpSMon projects as well leading on a vast array of pivotal and important research projects working closely with partner organisations and clinicians. Her vast knowledge and personal approach is taking the charity forward.

  • Interim Chief Executive Officer

    Dan is an experienced CEO having worked for various charities involved with important life-changing work and issues, including tackling long-term unemployment, delivering social care and providing accessible counselling services. Dan says “I like to work for organisations that take positive steps to change things for the better in our world. I feel privileged to be able to contribute this year to the vital mission of stopping preventable deaths from epilepsy.”

  • Deputy CEO & Bereavement Services Manager

    Tracy is Deputy CEO of SUDEP Action and a registered member of BACP who heads up our Bereavement Support Service. Tracy also contributes greatly to the charity’s wider objectives of improving understanding of SUDEP and other epilepsy deaths, including the Epilepsy Deaths Register. A longstanding member of the team, Tracy has helped shape so much of what SUDEP Action does.

  • Finance & Operations Manager

    Paul is responsible for the effective financial administration of the charity and supports the CEO and trustees on key internal operations. Ensuring every penny works for the charity is a key consideration for SUDEP Action, and Paul’s skills and qualities come to the fore in everything from managing office contracts to in-depth financial accounting.

  • Communications Manager

    Rob has worked in journalism / the charity sector for many years and oversees internal and external communications. Contact Rob if you’re looking for further information about SUDEP Action’s work or would like to discuss media interviews / opportunities and stories.

  • Fundraising Manager

    Katie heads up fundraising and is the go-to person if you’d like to discuss anything relating to an event or a donation. Whether you need help getting an idea off the ground, wish to discuss a legacy or gift or have specific questions about a fundraiser you are organising, Katie can support you.

  • Director of Policy & Influencing

    Jane is a co-founder of the charity and a former CEO with considerable expertise as a global advocate and expert in SUDEP. Her contributions to the advancement of the understanding of epilepsy risks are world renowned. Awarded the OBE in 2010 and a Social Accomplishment Award in 2013. In her new role for SUDEP Action, Jane’s focus is chiefly on policy making and bringing about further change.

  • Executive Assistant to Chief Executive & Finance Assistant

    Sarah’s work supports the smooth and efficient running of the charity’s operations, providing high level support to the CEO and the management team. It’s a big role with diverse responsibilities, incorporating HR and policy work. Her efficiency, ideas and dedication bring many facets of the charity’s work together and make them tick.

For one-to-one support after an epilepsy death contact our support team today

We provide the only support line for people bereaved by an epilepsy death and offer access to qualified counselling. Our dedicated support team has a special interest in, and understanding of, sudden and traumatic death.

Call our support team

If you are in the UK or Ireland we can talk with you by email or telephone. Our support team will do its best to give you what you need.

If you are outside the UK we will try and put you in touch with services available in your country.

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Sharing your experience with others going through the same thing is a really helpful tool for dealing with grief.