Meet the team

Dan is an experienced CEO having worked for various charities involved with important life-changing work and issues, including tackling long-term unemployment, delivering social care and providing accessible counselling services. Dan says “I like to work for organisations that take positive steps to change things for the better in our world. I feel privileged to be able to contribute this year to the vital mission of stopping preventable deaths from epilepsy.”

Tracy is Deputy CEO of SUDEP Action and a registered member of BACP who heads up our Bereavement Support Service. Tracy also contributes greatly to the charity’s wider objectives of improving understanding of SUDEP and other epilepsy deaths, including the Epilepsy Deaths Register. A longstanding member of the team, Tracy has helped shape so much of what SUDEP Action does.

Paul is responsible for the effective financial administration of the charity and supports the CEO and trustees on key internal operations. Ensuring every penny works for the charity is a key consideration for SUDEP Action, and Paul’s skills and qualities come to the fore in everything from managing office contracts to in-depth financial accounting.

Rob has worked in journalism / the charity sector for many years and oversees internal and external communications. Contact Rob if you’re looking for further information about SUDEP Action’s work or would like to discuss media interviews / opportunities and stories.

Katie heads up fundraising and is the go-to person if you’d like to discuss anything relating to an event or a donation. Whether you need help getting an idea off the ground, wish to discuss a legacy or gift or have specific questions about a fundraiser you are organising, Katie can support you.

Jane is a co-founder of the charity and a former CEO with considerable expertise as a global advocate and expert in SUDEP. Her contributions to the advancement of the understanding of epilepsy risks are world renowned. Awarded the OBE in 2010 and a Social Accomplishment Award in 2013. In her new role for SUDEP Action, Jane’s focus is chiefly on policy making and bringing about further change.

Sarah’s work supports the smooth and efficient running of the charity’s operations, providing high level support to the CEO and the management team. It’s a big role with diverse responsibilities, incorporating HR and policy work. Her efficiency, ideas and dedication bring many facets of the charity’s work together and make them tick.

Vicky works within our support team to provide specialised bereavement support calls to people facing the devastation and shock of an epilepsy-related death. Vicky also oversees connections with supporters and volunteers, providing invaluable know-how in the community and across the wider SUDEP Action teams.