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Support from trusts

Support from trusts

At least 21 people die from an epilepsy death in the UK every week

We are the leading epilepsy death prevention and bereavement support charity in the UK. We were the first to recognise epilepsy mortality as preventable and the first to give SUDEP (Sudden Unexpected Death in Epilepsy) a name.

We are committed to working to stop deaths from epilepsy.

We offer the only specialised epilepsy bereavement services in the world and lead on ground-breaking, potentially life-saving research.

We welcome enquiries from charitable trusts and foundations who are interested in our work.

Support from trusts

Support our core activities

    We welcome unrestricted funding to support our core activities, as well as restricted grants for specific projects in the following areas:

  • Working with more GPs and health professionals so they can better advise all epilepsy patients about the realities of SUDEP
  • Providing information and support to children and young people with epilepsy as well as their families
  • Leading dedicated research into the causes and prevention of SUDEP
  • Helping those bereaved by epilepsy to carry on and rebuild their lives

Support from trusts

Work for good

Our services, tools and knowledge prevent deaths. Your funding can help us to save more lives. 

If you would like to discuss opportunities to support our work and learn more about the significant impact a grant will make, please contact us.

Also see

 

SUDEP stands for Sudden Unexpected Death in Epilepsy

Before us, the term SUDEP didn’t exist 

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For one-to-one support after an epilepsy death contact our support team today

We provide the only support line for people bereaved by an epilepsy death and offer access to qualified counselling. Our dedicated support team has a special interest in, and understanding of, sudden and traumatic death.

Call our support team

If you are in the UK or Ireland we can talk with you by email or telephone. Our support team will do its best to give you what you need.

If you are outside the UK we will try and put you in touch with services available in your country.

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Join our mailing list to receive regular emails filled with supporter information, news and events.

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Sharing your experience with others going through the same thing is a really helpful tool for dealing with grief.

Regular giving to SUDEP Action.