Sign our petition to the Prime Minister
Policy
We need your voice – Sign our petition
We’re launching a petition to address the promises made by government to work with SUDEP Action and families to tackle SUDEP and epilepsy risk to prevent future deaths.
In July, SUDEP Action met with Government Minister Sharon Hodgson, Parliamentary Under Secretary for the Department of Health & Social Care and Olly Glover MP. The Minister agreed to work with SUDEP Action with a view to modernising SUDEP and seizure safety training and information and risk communication.
The Minister asked officials to set up a proposed ministerial round table meeting with SUDEP Action and supporting MPs to find practical solutions to problems. However, with the introduction of a new Prime Minister and Health Secretary, a round table which was due to go ahead on 20th October was cancelled with no new date offered.
Policy
Sign the petition – Add your voice to ours
We need your voice to call on the Prime Minister to act on the pledges made this year to prevent future deaths and improve the care and treatment received by people living with epilepsy.
Sign the UK petition using the form below which will be presented to No.10 on a date as we are advised by the Downing Street Liaison Team.
Sign the petition
This petition is for UK residents only.
The information you provide is used in accordance with our Privacy Policy. By submitting the form you agree to your information being used in accordance with that policy.
Write to your local MP
We urge everyone in the UK to write to their MP calling for the new government to renew and keep promises made to SUDEP Action. Find out your local MP by clicking here. Download our letter template by clicking on the button below.
We’d love to know if you do this! Email us at info@sudep.org to keep us informed.
Donate today
Donate now to drive our work championing the political and legal rights of families affected by SUDEP and prevention of epilepsy-related deaths.
At SUDEP Action, we’re fighting every day to make the NHS and social care and justice systems work better for families affected by epilepsy and sudden bereavement. As an independent charity we rely on donations from people like you, often people who know first hand how difficult it is for families to fight for change.
Donate £10 today to help us maintain pressure on decision-makers to make improvements to healthcare and justice to prevent future deaths, creating opportunities for people to thrive.
We have partnered with Run for Charity to offer charity places at hundreds of different events around the UK.
Also see
Donating your time and skills can help widen our reach
Could you leave a gift in your will for us?
Run, walk, raise awareness together
For one-to-one support after an epilepsy death contact our support team today
We provide the only support line for people bereaved by an epilepsy death and offer access to qualified counselling. Our dedicated support team has a special interest in, and understanding of, sudden and traumatic death.
