Research, Tools & Education

Learning disability resources

Learning disability resources

My Life with Epilepsy and the Clive Treacey Checklist

The My Life with Epilepsy project provides leaflets and videos for people with a learning disability and autistic people with epilepsy, along with their families & carers. Clive’s Checklist provides resources for commissioners of care services for people with a learning disability and autistic people with epilepsy, created in memory of Clive Treacey. These resources offer information about the risks linked to epilepsy and what steps can be taken to reduce risks and live more safely.

If you would like copies of these leaflets, please download them below or email us for copies.

Why this project, and helping people with epilepsy to live safer is important:

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Lifestyle & risks

For people with a learning disability and autistic people with epilepsy

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Lifestyle & risks

Help and support for carers and families

Why reducing risk for people with a learning disability and epilepsy is important:

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Lifestyle & risks

A legacy for Clive

Guidance for professionals commissioning and providing community and residential care services for people with a learning disability and autistic people with epilepsy. These resources were created in memory of Clive Treacey.

Also see

 

Supporting children, their families and their health professionals

Download our leaflets for more info

Advice on safety devices 

For one-to-one support after an epilepsy death contact our support team today

We provide the only support line for people bereaved by an epilepsy death and offer access to qualified counselling. Our dedicated support team has a special interest in, and understanding of, sudden and traumatic death.

Call our support team

If you are in the UK or Ireland we can talk with you by email or telephone. Our support team will do its best to give you what you need.

If you are outside the UK we will try and put you in touch with services available in your country.

Sign up to receive our emails

Join our mailing list to receive regular emails filled with supporter information, news and events.

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Sharing your experience with others going through the same thing is a really helpful tool for dealing with grief.

Staying safe, living with Epilepsy.