Epilepsy safety

Leaflets & Downloads

Epilepsy: Reducing risk

Parents & Carers

What you need to know

Parents & Carers

SUDEP Action: What we do

Epilepsy – Be smart, be safe

SUDEP – explained – A short guide for the health professional

SUDEP – reducing your risk – information for teenagers and young adults

SUDEP – understanding the risk information and guidance for people with epilepsy

Learning Disability Leaflets

Reducing Epilepsy Risks

Easy Read

Reducing Seizure-Related Risk

Plain English guide

Reducing Seizure-Related Risk

Support guide for Parents & Carers

The Clive Treacey Checklist – Report

The Clive Treacey Checklist – Guidance Document

The Clive Treacey Checklist – Download

Bereavement support leaflet

Have you been bereaved by epilepsy?

Other information Leaflets

EpSMon – Epilepsy Self-Monitor

SUDEP and Seizure Safety Checklist

Epilepsy Deaths Register (EDR) information card

For one-to-one support after an epilepsy death contact our support team today

We provide the only support line for people bereaved by an epilepsy death and offer access to qualified counselling. Our dedicated support team has a special interest in, and understanding of, sudden and traumatic death.

Call our support team

If you are in the UK or Ireland we can talk with you by email or telephone. Our support team will do its best to give you what you need.

If you are outside the UK we will try and put you in touch with services available in your country.

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Sharing your experience with others going through the same thing is a really helpful tool for dealing with grief.