Understanding grief

Everyone’s grief journey is different

After A Death

Our telephone counselling service is confidential and support is tailored to your needs.

    After the traumatic experience of a sudden death – if you are over 18 – we can help you:

  • Explore your thoughts and feelings
  • Talk about the complexities and impact of an epilepsy death
  • Discuss strategies that may help you in your day-to-day life

We know grief can be exhausting and your journey will be full of ups and downs

We are here to provide information and a listening ear. We want you to know you have someone on your side.

About Grief

There is no right or wrong way to grieve

Thoughts and feelings are affected by upbringing and the nature of the relationship with the person who has died. Grief is about who you are, who they were and how they died and  many things can affect your reactions.

Grief is an energy that has to be expressed one way or another and how you do that will be natural to you. There is no right or wrong way to grieve. You can’t avoid it or ignore it. You cannot go round it or over it, you must go through it.

We’re here to help you, every step of the way.

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About Grief

Grief is a physical and psychological reaction to loss

Loss can be confusing, upsetting and frustrating. People are different and grieve differently – and can be influenced by other things happening in their lives at the time of the death. 

All epilepsy deaths are sudden and the cause of a SUDEP death is still not fully understood. Many people tell us they feel angry because they didn’t know someone could die from epilepsy in this way. These deaths are shocking and traumatic for those left behind, who have not had a  chance to say goodbye. Some people tell us they feel guilty; because they feel they could have done more to prevent the death from happening.

Life without Kathryn: A family’s story (see video).

Also see

 

Contact us if you have concerns about investigations

Losing a loved one can leave you with more questions than answers

Your experiences have the power to break down barriers

About Grief

Recognise when to ask for help

There are many reactions to grief. Intense emotions such as crying are normal or you may react in a more physical way and want to throw yourself into activities. It’s all about finding the best way to adapt to a life with loss.

Grief is a normal reaction to loss, but it is something which carries a degree of risk.  It is important not to ignore physical symptoms and to recognise when grief has turned into something more serious that may require more specialist support.

 

For one-to-one support after an epilepsy death contact our support team today

We provide the only support line for people bereaved by an epilepsy death and offer access to qualified counselling. Our dedicated support team has a special interest in, and understanding of, sudden and traumatic death.

Call our support team

If you are in the UK or Ireland we can talk with you by email or telephone. Our support team will do its best to give you what you need.

If you are outside the UK we will try and put you in touch with services available in your country.

Sign up to receive our emails

Join our mailing list to receive regular emails filled with supporter information, news and events.

Follow us on socials

Sharing your experience with others going through the same thing is a really helpful tool for dealing with grief.

The bereaved community is at the heart of all our work.

We are dedicated to ensuring there are learnings after a death. So that we can prevent further deaths in the future.