SUDEP Action Launches EpSMon app
Mobile technology is becoming an established tool in patient self-care and EpSMon is a great example of this.
Life can sometimes feel like stepping on a roller coaster; new places, new careers, new people, the changes and challenges come thick and fast. Living with epilepsy can make you think you’re being forced to slow down when you want to speed up – but epilepsy shouldn’t stop you from living a life full of choices, adventures and freedoms. Just like anyone else.
EpSMon was developed by SUDEP Action, in partnership with a group of internationally renowned epilepsy experts. This free, easy-to-use app allows you to record, track and view your seizure data in one place and find out more about epilepsy. It’s designed to support professional care, not replace it.
The app tracks the things that can affect your epilepsy such as stress or what medications you’re taking – and when you’re taking them – and your individual seizure patterns. Navigation is simple, so you can keep an active record of your seizures, their severity and their type. Reports can be downloaded providing you with hard facts and real-time data about changes in your epilepsy to show to your doctor or nurse.
EpSMon, which stands for ‘epilepsy self-monitoring’, will help you build good habits so you can be confident doing the things you want to do, studying, working, travelling, playing sports, going out and living life on your terms. It’ll help you to have more control over your life, not less.
A quick check-in every three months will help you learn more about epilepsy so you can track your own risks over time.
Having EpSMon in your pocket will help you learn, self-assess and stay organised in three easy steps… Check. Track. Live.
Why choose EpSMon?
SUDEP Action sees too many young lives cut short, which is why we have developed the EpSMon app.
SUDEP stands for Sudden Unexpected Death in Epilepsy. It’s a real thing, but not often talked about. At least 21 people die each week from epilepsy, and it’s estimated 80% of these deaths are preventable with better seizure control. Many of those who die from SUDEP are under 25 and otherwise healthy, apart from having epilepsy. What causes SUDEP is not known but we do know that one of the factors associated with increased risk is poor seizure-control.
Seizures are different for everyone, but the EpSMon app lets people with epilepsy track changes in their own health and wellbeing, providing key info for them to take to the health professional they see about their epilepsy. Research has shown there are key risk factors that can affect seizure control and safety – and that these change over time.
EpSMon does not provide medical advice and is not intended to diagnose, treat, or predict medical conditions.
Please donate to SUDEP Action, to support projects like EpSMon – which we have made free to all adult UK users
