General
‘Checklist must be rolled out as tribute to Clive’
Clive Treacey was failed in life, but his family are ensuring there is a lasting legacy in his name.
SUDEP Action
News
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FundraisingLake District hike in memory of Jason Morland
Friends and family of Jason Morland say Jason had a heart of gold. Their hike around the Lake District was in his memory.
FundraisingHonouring Hinesh with bucket-list climb of Kilimanjaro
Matt Brinkley and Preema Patel conquered Kilimanjaro to fulfil a wish of Preema’s brother Hinesh.
GeneralSUDEP Action delighted to add Dr Rhys Thomas to Board
Dr Rhys Thomas has joined the Board of epilepsy charity SUDEP Action as a trustee.
GeneralAmber’s death highlights need for more SUDEP discussions
Amber Walker died of SUDEP in 2023. A Prevention of Future Deaths Report says more must be done to highlight SUDEP risks in patient discussions.
FundraisingRemembering Ryan with Goodie Fest
Abigail Birtles, Charlotte Templeman and Kieron Parry organise GoodieFest in memory of Ryan Goodman.
CampaignsMotion in Scottish Parliament to acknowledge SUDEP Action Day
MSP Monica Lennon lodges motion to recognise SUDEP Action Day
CampaignsTen barriers SUDEP Action has broken down since 1995
Jane Hanna OBE identifies the top 10 barriers that SUDEP Action has fought since it was founded in 1995.
CampaignsShoelaces: A personal story of loss and perseverance
Roy Grimes has written a book of his experiences called Shoelaces following the death of his brother Nathan.
GeneralOmbudsman says health board failed vulnerable epilepsy patients
A complaint brought by seven families – who had been using a specialist service that stopped abruptly in June 2021 – has been upheld by the Ombudsman.
For one-to-one support after an epilepsy death contact our support team today
We provide the only support line for people bereaved by an epilepsy death and offer access to qualified counselling. Our dedicated support team has a special interest in, and understanding of, sudden and traumatic death.
