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Support our Big Give Christmas Challenge
This year, SUDEP Action has been accepted to be part of The Big Give Christmas Challenge, a match-funding initiative where your contribution can make double the difference!
SUDEP Action
News
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GeneralFailing policies are failing people with epilepsy
A blog by Jane Hanna OBE, SUDEP Action Director of Policy & Influencing
GeneralBenFest in memory of Ben Exley
A village festival to commemorate Ben’s 30th birthday.
GeneralEpilepsy in the workplace
Ellie Goodwin gives a run down of managing epilepsy in the office
GeneralSUDEP Action welcomes NICE Appeal decision on new anti-seizure medication
Hope renewed for use of anti-seizure medication for patients with Lennox-Gastaut Syndrome
GeneralGlimmer of hope – but actions needed
SUDEP Action CEO Sammy Ashby on the Government’s new 10-year plan for change.
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Epilepsy and dating
Ellie Goodwin gives us a quick tour of dating as someone with epilepsy.
GeneralOur CEO; Sammy Ashby on SUDEP Action Day
We could not have predicted how this day would grow into the global event it is today, supported and embraced by epilepsy organisations all over the world.
GeneralDo a My Way to 5K your own way
The My Way to 5K challenge takes place annually between 1st October – 20th alongside SUDEP Action Day on Wednesday 16th October 2024.
GeneralInquest rules Joshua died of SUDEP with epilepsy undiagnosed
An inquest has ruled that Joshua Owen died of SUDEP, even though his epilepsy was never diagnosed.
GeneralNew MHRA guidance increases risk for people with epilepsy
We believe the lack of MHRA transparency and consultation on the Prevent Programme is outside the range of reasonable and acceptable.
GeneralNew research: The impact of Covid-19 on people with epilepsy
SUDEP Action has contributed to a new research paper on the impacts of Covid-19 on people with epilepsy.
GeneralApplications open for SUDEP Action Fellowship
Exciting new research partnership announced with Epilepsy Research Institute (ERI).
GeneralCoalition of orgs ask for urgent meeting with new Health Secretary
SUDEP Action has put its name to a letter urging Wes Streeting to meet to discuss critical medicine supply issues.
GeneralFamily believe Charlie should still be alive today
The inquest into the death of Charlie Marriage will take place from June 24-28 at Inner London South Coroners Court, Southwark.
GeneralPressure on party leaders to fix medicine shortages
SUDEP Action is continuing to work with Epilepsy Society, Epilepsy Action and Parkinson’s UK to improve access to life-saving medicines.
General‘Bella would be so proud’
SUDEP Action supporter Colin Eveleigh will have a work displayed at The Royal Academy’s Summer Exhibition in July and August.
GeneralNew study: More risk discussions needed with patients
Research compares views of epilepsy professionals in the UK and Norway: Despite international guidance, SUDEP-related discussions are still not consistently taking place.
GeneralWe all need to ‘be more Hannah’
A family is urging each other to ‘be more Hannah’ in memory of Hannah Smith, who died last year from SUDEP.
GeneralOur Help for Hope pledge – ask your MP!
If elected, I will meet with SUDEP Action to talk about rising preventable deaths and harms to people with epilepsy.
For one-to-one support after an epilepsy death contact our support team today
We provide the only support line for people bereaved by an epilepsy death and offer access to qualified counselling. Our dedicated support team has a special interest in, and understanding of, sudden and traumatic death.
