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Published 12th June 2026

Inquest held into death of Jacob Sunley

The inquest found that Jacob died of natural causes as a result of SUDEP. 

Jacob was just 20 when he died.  He was started on sodium valproate for epilepsy and was seizure-free for nearly three years. He changed from sodium valproate during the time that new restrictions for prescribing it to men and boys began. 

In the months that followed, he had episodes of seizure including a cluster of three seizures in June 2025.  He died on 3 August 2025.

The inquest into his death yesterday found that he died of natural causes as a result of SUDEP. 

His family will be telling Jacob’s story, including all the concerns that they took to the inquest.

His parents said Jacob loved his life, he was an outgoing, intelligent, kind and beautiful young man with a huge circle of friends. His family adored him beyond measure.

SUDEP Action continues to support his family.

Jacob is pictured with his mum Tania

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