Fundraising
Taking to the skies in memory of Erin
Sponsored paraglide in memory of Erin.
SUDEP Action
News
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FundraisingRunning the Great North Run in Memory of Andy
Over £7,000 raised in memory of Lucy Grant in Mighty Stride Kiltwalk.
GeneralBetter healthcare systems needed to support ‘honest conversations’
SUDEP Action tools, such as the Checklists, need to be integrated into care systems, rather than just made available.
GeneralNew EpSMon app creates lasting legacy for Shane
Shane Corrigan died of SUDEP in 2018. Funds raised in his name have supported the development and rollout of the EpSMon app.
GeneralSUDEP Action Launches EpSMon app
Mobile technology is becoming an established tool in patient self-care and EpSMon is a great example of this.
GeneralGovernment pledges to work with SUDEP Action on epilepsy risks
Westminster meeting with Minister results in number of promises to collaborate with SUDEP Action.
GeneralNew record dedicated to ‘those affected by SUDEP’
Band member Scott Hardcastle lost his sister Samantha to SUDEP in 2004.
GeneralValproate; guilty until proven innocent?
Why UK rules on a life-saving epilepsy medicine don’t make sense
FundraisingMaisie Tothill Ball brings friends and family together
Purple-themed Ball held in memory of Maisie Tothill.
GeneralInquest held into death of Jacob Sunley
The inquest found that Jacob died of natural causes as a result of SUDEP.
For one-to-one support after an epilepsy death contact our support team today
We provide the only support line for people bereaved by an epilepsy death and offer access to qualified counselling. Our dedicated support team has a special interest in, and understanding of, sudden and traumatic death.
