General
New EpSMon app creates lasting legacy for Shane
Shane Corrigan died of SUDEP in 2018. Funds raised in his name have supported the development and rollout of the EpSMon app.
SUDEP Action
News
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GeneralSUDEP Action Launches EpSMon app
Mobile technology is becoming an established tool in patient self-care and EpSMon is a great example of this.
GeneralGovernment pledges to work with SUDEP Action on epilepsy risks
Westminster meeting with Minister results in number of promises to collaborate with SUDEP Action.
GeneralNew record dedicated to ‘those affected by SUDEP’
Band member Scott Hardcastle lost his sister Samantha to SUDEP in 2004.
GeneralValproate; guilty until proven innocent?
Why UK rules on a life-saving epilepsy medicine don’t make sense
FundraisingMaisie Tothill Ball brings friends and family together
Purple-themed Ball held in memory of Maisie Tothill.
GeneralInquest held into death of Jacob Sunley
The inquest found that Jacob died of natural causes as a result of SUDEP.
FundraisingBig Purple Quiz support for the Charlie Card
Quiz night supports Charlie Cards in memory of Charlie Marriage.
GeneralPaul Warren joins SUDEP Action Board
New trustee Paul lost his sister to SUDEP in 2019.
GeneralForever Alive: Natalia’s story told on London stage
Lilianna performs play in memory of Natalia.
For one-to-one support after an epilepsy death contact our support team today
We provide the only support line for people bereaved by an epilepsy death and offer access to qualified counselling. Our dedicated support team has a special interest in, and understanding of, sudden and traumatic death.
