Our Events

SUDEP Action Day

16th October 2024

What is SUDEP Action Day?

SUDEP Action Day is dedicated to raising awareness of epilepsy deaths worldwide. 

Launched by us in October 2014 (as SUDEP Awareness Day), SUDEP Action Day shines a light on the largest cause of death in people with epilepsy and helps empower others through increased awareness. Funds raised by us through SUDEP Action Day will contribute to important work in this area.

SUDEP Action Day is also a time when epilepsy organisations across the world come together with one voice and one united aim.

We must encourage every person with epilepsy, their families and health professionals to be more aware of risks and to take an active role in discussing, reviewing and reducing them.

SUDEP Action Day is an opportunity to discover more about our organisation, what we do and how we do it. Throughout the week, from October 14-18, we will share stories and information and we want you to do the same, to raise awareness about epilepsy and SUDEP and spread understanding.

SUDEP Action Day

Get involved this year: #OurRisksOurRights

The theme of this year’s SUDEP Action Day on 16th October is ‘Our Risks Our Rights’ #OurRisksOurRights

Why #OurRisksOurRights

Because every person living with epilepsy has a right to be told about the risks that come with the condition – as well as a right to early diagnosis and access to information, medication and care.

Not everyone with epilepsy is aware of SUDEP (Sudden Unexpected Death In Epilepsy) or epilepsy risks, which can put them in danger of worsening seizures, injury or of dying prematurely.

People with epilepsy and their families want to be told about SUDEP and epilepsy risks so they can take necessary actions to live more safely.

SUDEP Action Day 2024 Poster

Don’t forget to print out our SUDEP Action Day 2024 Poster

Display our poster somewhere in your local community to raise awareness of epilepsy risks and rights this year.

You can also take a photo and share on your social media platforms – remember to tag us in!

Please support us this SUDEP Action Day 2024

Be a voice for the epilepsy community

Share #OurRisksOurRights on SUDEP Action Day, 16th October.

Let us know how you plan to get involved so we can support you – send us images of what you do or tag them with  #SUDEPActionDay2024 and/or #OurRisksOurRights so we can share them too!

 

Also see

 

We always welcome suggestions for new partnerships

SUDEP Action  rely on our supporters and fundraise to help us do what we do.

Thanks to your donations we can save lives

For one-to-one support after an epilepsy death contact our support team today

We provide the only support line for people bereaved by an epilepsy death and offer access to qualified counselling. Our dedicated support team has a special interest in, and understanding of, sudden and traumatic death.

Call our support team

If you are in the UK or Ireland we can talk with you by email or telephone. Our support team will do its best to give you what you need.

If you are outside the UK we will try and put you in touch with services available in your country.

Sign up to receive our emails

Join our mailing list to receive regular emails filled with supporter information, news and events.

Follow us on socials

Sharing your experience with others going through the same thing is a really helpful tool for dealing with grief.

Will you support us for Purple Day in March?