About the checklist
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“You don’t want to be alarmist when you’re delivering the news… so the Checklist is just a really useful way of introducing the conversation. It’s so nicely laid out that you can have the conversation and they can see what the consequences are so it helps your patients, empowering them to take control.”
“The Checklist is a good tool to assess risks of SUDEP in patients and provide guidance to patients and carers.”
“The SUDEP & Seizure Safety Checklist has helped have a conversation about SUDEP which can be a difficult one for patients to take on board. Once they know it is all about risks and safety, and which ones can be modified, it’s a lot easier. One patient said that he was not compliant at taking his medication. He had a referral to the local Medicine Support team and now has an electronic reminder which has lessened his risk substantially as he is now taking his medication on time.”
“I do talk more about SUDEP with patients and carers than I did before. The Checklist has made it easier to bring it up as part of the wider risk assessment.”
“This is a fantastic opportunity to bring potentially life-saving epilepsy risk information to the fingertips, or mouse clicks, of many primary care clinicians across England – some of whom may support people with epilepsy but be unaware of the significant risks the condition brings.”
Background for clinicians – suggested reading
The content and risk factors identified in the SUDEP and Seizure Safety Checklist are underpinned by the current key research in the field.
We would recommend clinicians using the tool take a look at these core articles for an overview from the leading experts.
A road-map for the UK
How can we translate population research into practice to prevent avoidable death in epilepsy
More than 1,300 clinicians regularly used our Checklist last year
We want to create a paediatric version of the SUDEP and Seizure Safety Checklist.
For one-to-one support after an epilepsy death contact our support team today
We provide the only support line for people bereaved by an epilepsy death and offer access to qualified counselling. Our dedicated support team has a special interest in, and understanding of, sudden and traumatic death.
Call our support team
If you are in the UK or Ireland we can talk with you by email or telephone. Our support team will do its best to give you what you need.
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