Statement from our Fundraising Team
SUDEP Action is incredibly grateful for all the support we receive from our fundraisers and we understand how devastating it feels when events you have carefully planned and organised or worked hard to train for are cancelled or postponed.
We understand that it is important to you, our fundraisers, to be able to continue to raise vital awareness of SUDEP and epilepsy deaths, as a tribute to someone who has died suddenly. We also understand the national emergency the UK is facing at this time and the importance front line workers face, and that people with epilepsy, bereaved families and all people needing help can continue to access services.
If you find you have had to cancel or postpone an event due to safety restrictions in place, we would like to assure you that we are here by your side to support you.
If you have questions or concerns regarding your fundraising event we encourage you to get in touch by phone on 01235 752850 or by email at [email protected]
If you feel you need emotional support at this time, we encourage you to contact our support line on 01235 772852 or [email protected]
SUDEP Action is incredibly grateful for everything you do to support our work and to remember someone you have lost by raising awareness of risks and enabling the charity to be there to provide support whenever it is needed.
Purple Day (26 March) is an international epilepsy awareness day
The day was founded by a young girl called Cassidy Megan in 2008. Motivated by her own struggles with epilepsy, Cassidy's goal is to get people talking about epilepsy in an effort to dispel myths and inform those with seizures that they are not alone.
It is a great global day to raise funds and awareness for SUDEP Action.
Your fundraising can help us to dispel myths about SUDEP, raise awareness and ultimately save lives.
How can I get involved and raise awareness this Thursday 26 March 2020?
You can still take part remotely this Purple Day, here are some ideas to help inspire you:
- Set up a Facebook Fundraiser
- Take a Purple Day selfie and tage five friends to do the same to help raise awarenss of #epilepsy risks
- Reshare any of the SUDEP Action social posts throughout the Day
Share your photos on Instagram, to the SUDEP Action Facebook page or tweet SUDEP Action using the #PurpleDay hashtag.
Contact us today and let us know you are getting involved.
How can I donate?
If you would like to, here are a number of ways you an dontate.
To make a text donation to 70085, text the word 'PREVENT' followed by your amount which can any whole amount between £5 to £20.
For example PREVENT £20. This text will cost your donation amount, plus your std rate message.
For other ways to donate, such as JustGiving, Facebook Donate, BACS, visit - https://sudep.org/i-want-donate
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Simply right click on the image and save to use on your own social media post.
Without you SUDEP Action would not be able to undertake the vital work needed to help save lives and reduce the number of epilepsy deaths in the UK. People bereaved by epilepsy would be left with little support from experts who understand.
Get in touch to let us know what your plans - email [email protected] or call us on 01235 772850. You can also request a Purple Day fundraising pack, last day for requests will be Friday 20 March, to ensure delivery by 26 March.
After this date, you can download a copies of the Purple Day poster (coming soon) and/or our information leaflets to help create a display and awareness.