SUDEP Action

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New project launched to create epilepsy risk Checklist for children


SUDEP Action and Cornwall Partnership NHS Foundation Trust are collaborating with Young Epilepsy to create a paediatric version of the SUDEP and Seizure Safety Checklist. The award-winning Checklist, which launched in 2015, supports health professionals in discussing epilepsy mortality risks and SUDEP with their patients (aged 16+). It is currently used by over 1,500 health professionals across the UK, and has been recognised by NHS Rightcare, the Learning Disabilities Mortality Review (LeDeR) and Mothers and Babies: Reducing Risk through Audits and Confidential Enquiries (MBRRACE) as having the potential to prevent deaths and help people with epilepsy to live more safely.

This exciting project will gather feedback from health professionals, young people with epilepsy and parents of children with epilepsy, to create a Checklist and other resources to support important conversations. By having these discussions in a structured way - that is personal to each patient and based on the latest evidence into SUDEP and epilepsy mortality risks - the project aims to increase understanding of the risks linked to living with epilepsy. Opportunities to get involved in the project will be shared via SUDEP Action and Young Epilepsy, and you can register your interest here.

Working alongside the project team are researchers from five organisations. A group of leading experts will ensure the project has maximum impact. Find out more about why they’re involved in this project via the below video: