EpSMon App

FAQs

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EpSMon app – FAQ’s

Who is EpSMon for?

It’s for adults over the age of 18 with epilepsy, to help self-manage and assess epilepsy risks between medical appointments. The app is based on the SUDEP and Seizure Safety Checklist tool we created for clinicians. 

I have epilepsy but I’m seizure-free.
Why would I need it?

Even if you’re seizure-free it’s important to still have an annual review with your GP / clinician and to continually monitor and review your epilepsy. Being aware of any potential changes to risk can help you stay seizure-free.

EpSMon app – FAQ’s

How do I get it?

EpSMon is a completely free app that’s available on iOS and Android devices. Just visit the app store for your device and search for EpSMon.

And it costs nothing?
That’s right. It’s completely free.

EpSMon app – FAQ’s

I don’t live in the UK; can I still download the app?

No, at present it’s only available in the UK because the project is largely funded by bereaved families in the UK. However, we do hope to make it available to other countries with further support / funding.

I’ve got the app but I need more help. What should I do?

Contact the EpSMon helpline via email or call.

Also see

We want to create a paediatric version of the SUDEP and Seizure Safety Checklist.

Why use EpSMon? What users and experts say

Our research remains vital because of a culture that systematically downplays epilepsy risk

For one-to-one support after an epilepsy death contact our support team today

We provide the only support line for people bereaved by an epilepsy death and offer access to qualified counselling. Our dedicated support team has a special interest in, and understanding of, sudden and traumatic death.

Call our support team

If you are in the UK or Ireland we can talk with you by email or telephone. Our support team will do its best to give you what you need.

If you are outside the UK we will try and put you in touch with services available in your country.

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