What is SUDEP Action Day?
SUDEP Action Day is a global day dedicated to raising awareness of epilepsy deaths.
Launched by us in October 2014 (as SUDEP Awareness Day), it shines a light on the largest cause of death in people with epilepsy, helping empower people through increased awareness and raise funds for SUDEP research.
Last year’s event, saw over 100 organisations take part globally to help raise awareness of SUDEP and epilepsy risks.
What is the this year's campaign theme?
This year's theme (2023) is My Safety Matters - #mysafetymatters
As leaders in SUDEP and epilepsy deaths for more than 25 years, we know the topic of SUDEP raises questions that can be worrying for many to think about. But SUDEP Action Day is about helping people take positive steps towards reducing epilepsy risks.
Not everyone with epilepsy is aware of or told about SUDEP (Sudden Unexpected Death In Epilepsy) and epilepsy risks, which can put them in danger of worsening seizures, injury or of dying prematurely. Some health professionals worry that discussing these risks could frighten their patients. But these negative outcomes can be prevented for many people with epilepsy; and openly discussing these risks allows people to make informed choices about treatments and lifestyle.
People with epilepsy and their families want to be told about SUDEP and epilepsy risks. Many bereaved families were not told about SUDEP and wish that this vital information had been shared as it might have saved their loved one’s life.
This October, #mysafetymatters
Because those living with epilepsy - and their families - have a right to information, support, answers to questions and the best advice and treatments available to keep them safe. They matter. And their safety matters.
How can I get involved?
If it's sharing our messaging, your experiences, taking part in our My Way to 5K event or remembering a loved one - we encourage you take part this October.
For more ideas, help or support, contact us on [email protected]
We look forward to hearing and seeing how you get involved.