Understanding risks is vital for staying safe
Epilepsy safety
Epilepsy is not always obvious, but it impacts our classrooms, workplaces and communities
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One in 20 people will experience a seizure in their lifetime
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There are over 100,000 emergency visits a year in the UK because of epilepsy
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At least 21 people die from an epilepsy death each week with most deaths happening at home
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The latest population research (part funded by SUDEP Action) between 2004 and 2014 showed deaths in people with epilepsy rising by 69%
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It’s been known for two decades that at least four out of 10 deaths could be avoided
Today, epilepsy is a priority for the World Health Organisation. The UK Epilepsy Research Priorities Partnership has also made epilepsy mortality the number one priority for research. Taking simple actions can help people with epilepsy to live much safer.
Epilepsy safety
Staying safe means having up-to-date information
Epilepsy is a complex condition which can be worrying and difficult to understand. Staying safe means having key up-to-date information to make the best decisions possible.
Our information is supported by the latest research on epilepsy risks, epilepsy deaths and SUDEP – which also underpins our safety tools, the SUDEP & Seizure Safety Checklist and our EpSMon app.
Also see
Why use EpSMon? What users and experts say
More than 1,700 clinicians regularly use our Checklist
Learn about Epilepsy lifestyle and Risk
For one-to-one support after an epilepsy death contact our support team today
We provide the only support line for people bereaved by an epilepsy death and offer access to qualified counselling. Our dedicated support team has a special interest in, and understanding of, sudden and traumatic death.