SUDEP Action

Making every epilepsy death count
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Epilepsy and SUDEP

Every year, roughly one in every thousand people with epilepsy will die suddenly with no obvious cause. This is what we call Sudden Unexpected Death in Epilepsy or SUDEP.

Thankfully the risk of SUDEP is low, but will vary from person to person.  It is something to raise with your doctor.  SUDEP is not associated with all seizure types so you may not need to consider this risk.  The risk may be greater for a small number of people, which is why it’s important to talk to your medical team about your own condition.

If SUDEP is a risk, you may want to consider it as part of your care plan.  Your doctor can advise you on what choices you may have to reduce risk.

For more information