SUDEP Action

Making every epilepsy death count
Call us now on 01235 772850

Project to take the Checklist to Ireland!

SUDEP Action has begun work with Epilepsy Ireland to introduce the SUDEP and Seizure Safety Checklist to Ireland.

Will you support us on Purple Day?

Purple Day is coming soon on Tuesday 26th March. Help us spread awareness about epilepsy and epilepsy risks, so people know the true facts from the fiction. 

A legacy at last for Clive

New guidance designed to reduce the epilepsy risks faced by people with learning disabilities has been launched by NHS England and SUDEP Action. 

People deserve better access to epilepsy meds

Jane Hanna says the valproate issue is compounding other NHS pressures relating to the vital supply of epilepsy medicines to patients.

Ant and Dec's takeaway surprise for Sharon!

 Sharon Cole wins a holiday on Saturday Night Takeway thanks to her amazing SUDEP Action fundrasing!

We invite you to share your story

Your experience has the power to make an impact and help SUDEP Action to break down barriers for change. Contact us to learn more.

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Welcome to SUDEP Action

Welcome to SUDEP Action

There are at least three epilepsy-related deaths a day in the UK. 

SUDEP Action is dedicated to raising awareness of epilepsy risks and tackling epilepsy deaths including Sudden Unexpected Death in Epilepsy. We are the only UK charity specialised in supporting and involving people bereaved by epilepsy. 

Our services include bereavement support, counselling, help with understanding the inquest process and in collaboration with UK research teams, the involvement of bereaved families and professionals in research through the Epilepsy Deaths Register.

If you have been affected by an epilepsy death, please contact our support team on 01235 772852.

SUDEP and Seizure Safety Checklist