SUDEP Action

Making every epilepsy death count
Call us now on 01235 772850

Emergency attendances for people with epilepsy in a rural population – what can be done to reduce this?

A study into Emergency Department attendances in a rural community has highlighted a...

SUDEP: What every Neurologist should know

Leading epilepsy experts have explored  SUDEP and the role of the Neurologist in identifying and communicating this risk with their patients.

My Story

My Story - is an important and powerful way for you to join our campaign. As ‘the voice of the bereaved’ for over 20 years, we use information shared with us to good purpose. We are very experienced in supporting those who wish to share their stories and who find it helpful to know that they are part of the ‘voice.’  

Sudden Death in the Young; What a terrible waste

Gresham Lecture explores effect of premature deaths from Sudden Unexpected Death in Epilepsy (SUDEP).

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Welcome to SUDEP Action

Welcome to SUDEP Action

There are at least three epilepsy-related deaths a day in the UK. 

SUDEP Action is dedicated to raising awareness of epilepsy risks and tackling epilepsy deaths including Sudden Unexpected Death in Epilepsy. We are the only UK charity specialised in supporting and involving people bereaved by epilepsy. 

Our services include bereavement support, counselling, help with understanding the inquest process and in collaboration with UK research teams, the involvement of bereaved families and professionals in research through the Epilepsy Deaths Register. If you have been affected by an epilepsy death, please contact our support team on 01235 772852.

SUDEP and Seizure Safety Checklist