SUDEP Action

Making every epilepsy death count
Call us now on 01235 772850

Privacy and Cookie Policy

About this policy

This website privacy and cookie policy aims to help you to understand what information SUDEP Action might collect about you through our website and how we use it. This privacy and cookie policy statement applies solely to information collected through

About SUDEP Action

•    This website is owned and operated by SUDEP Action - SUDEP Action, registered charity 1164250 (England & Wales), SC047223 (Scotland).
      Epilepsy Bereaved (founded 1995) is part of SUDEP Action.
•    Our registered office is at 12a Mill Street, Wantage, Oxfordshire, OX12 9AQ. You can contact us at this address, by telephone on 01235 772852 or by sending an email to
•    We are supported in a number of areas of our work by educational grants from pharmaceutical companies. We do not promote any of the drugs manufactured by those or any other pharmaceutical companies.
•    When we refer to “we” or “our”, we are referring to SUDEP Action. When we refer to “this website” we are referring to
Information we collect
•    When you enquire about our activities, make a donation to us, participate in, access or sign up to a SUDEP Action service, we may receive personal information about you. This includes when you:
•    Sign up for our e-news
•    Contact us through an online form or by email
•    Register on our forum
•    Make a purchase
•    Make a donation (including any other person’s name you give us or description of any event)
•    Give your taxation status (for Gift Aid purposes)
•    Complete a survey
•    The personal information you provide may include your name, email address, postal address, telephone number, mobile number or date of birth.
•    By submitting your details, you enable us (or a third party, where applicable) to provide you with the service you have requested.
•    SUDEP Action also uses cookies (see below) and collects IP addresses of visitors to this website. We also collect statistics on website visits both at web server level and using Google Analytics.

How do we use this information?

We may use your personal information to:

•    Provide you with the services, products or information you have requested
•    To communicate with you
•    For administration purposes and to further our charitable aims, including fundraising activities
•    To allow you to participate in interactive features of our service, when you choose to do so
•    To analyse and improve our website
•    To identify the location of users, to block disruptive use and to establish the number of visits from different countries

Personal Information and the Data Protection Act

Any personal information you submit through this website is covered by the Data Protection Act 1988 and will be kept in accordance with this Act. We do not share email addresses or other contact details with any other organisation without your consent.

Personal information on the Forum

Please be aware that the Forum is a public message board which can be viewed by the general public. Any personal information that you disclose on the Forum will be available for the general public to read – it is strongly recommended that you do not post personal details or sensitive personal data on the Forum.


Cookies are small pieces of information sent by a web server to a web browser, which enables the server to collect information from the browser. Essentially, it takes the form of a small text file deposited on your computer’s hard drive.
SUDEP Action may, in future, use cookies to ensure:

•    That you interact with our websites successfully
•    We identify when you visit our websites
•    We keep track of your browsing patterns

The use of cookies does not give us access to the rest of your computer. If you want to prevent our cookies being stored on your computer in future, you may do so by referring to your internet browser’s instructions. You can do this by clicking on the “Help” menu. Please note, however, that if you disable our cookies, you may not be able to access certain services or facilities on our sites and your use of our sites may be restricted. Further information on deleting or controlling cookies is available at and

None of our cookies we use collect personal data about our website visitors. By using our website, you agree that we can place these types of cookies on your computer.