SUDEP Action

Making every epilepsy death count
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Write to your MP or Policy Maker for SUDEP Action Day 2021

It’s #Time2Change this SUDEP Action Day – will your MP or policy maker help?

One great way to get involved in SUDEP Action Day 2021 is to contact your local MP or local policy makers (eg: Councillors, politicians, mayors).

SUDEP Action has some incredibly supportive MPs and policy makers who help us make sure our voice is heard in UK Parliament, but there are many more who aren’t aware about the urgent need to tackle epilepsy deaths, including those from SUDEP (Sudden Unexpected Death in Epilepsy). SUDEP Action Day is the perfect opportunity to raise awareness of this with your local MP and local policy makers.

Contacting your local (town and county) Councillors or politicians is another important way to raise local awareness of epilepsy deaths, SUDEP and risks for people with epilepsy. Their role is to represent their local community and are involved in shaping local services including health services.  

Whether you’ve spoken to your MP / local Councillor before, or if this is your first time writing to them – getting involved by contacting them can really help us raise local and national awareness. 

While many MPs may not be holding traditional local surgeries at the moment because of COVID-19, they may be offering virtual/digital alternatives where you can speak to them about these key issues and share your story with them.

Find your local MP and their contact details here: https://www.parliament.uk/mps-lords-and-offices/mps/
You can also find your local Councillors here: https://www.gov.uk/find-your-local-councillors

Resources to help (UK):

File SUDEP Action Day 2021 - MP/Policy Maker Template Letter

 

PDF icon SUDEP Action Day 2021 - MP/Policy Maker Briefing

You may also want to send them the link to, or a copy of our Lives Cut Short report which highlights our concerns for the epilepsy, and epilepsy bereaved communities due to the COVID-19 Pandemic. 
 

If you live outside of the UK, you may be able to adapt these resources to suit, and you can check here if an organisation local to you is also supporting SUDEP Action Day.

Important points to remember:

  • MPs can only respond to people who live in their constituency – could your family and friends, who may live in other areas, also get involved and help you raise awareness and share your story?
  • MPs get a lot of letters/emails, so it may take them some time to reply to you. If you have not heard back from them in a couple of weeks, you may want to consider giving their constituency office a call or checking that your email/letter has been received.
  • Sometimes MPs will come back with additional questions or plan to take action because of your letter. SUDEP Action are here to help answer any questions they may have and can also provide further information on Parliamentary campaigns/work being done on epilepsy deaths – so please put them in touch with us directly.
  • Don’t forget to let us know if you do make contact with and hear back from your local MP or policy maker! It is great to know what impact our supporters are having, and knowing which MPs are aware of how these key issues can help us push our campaigns further with Parliament.

Find out more ways you can get involved in SUDEP Action Day here: http://sudepactionday.org/get-invhurrolved/campaigners/