SUDEP Action

Making every epilepsy death count
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Write to your health services for SUDEP Action Day 2021


It’s #Time2Change this SUDEP Action Day – will your local health providers help?

One great way to get involved in SUDEP Action Day 2021 is to contact your local health providers eg: Gp Surgeries, Hospitals, County Council Health Scrutiny Boards or Integrated Care System (ICS).

SUDEP Action has some incredibly supportive health professionals who support SUDEP Action Day and the work of the charity, but there are others who aren’t aware about the urgent need to tackle epilepsy deaths, including those from SUDEP (Sudden Unexpected Death in Epilepsy). SUDEP Action Day is the perfect opportunity to raise awareness of this. 

Whether you’ve spoken to your local health providers about this topic before, or if this is your first time writing to them – getting involved by contacting them can really help us raise local and national awareness. Please be aware that many health providers remain under pressure due to the COVID-19 pandemic, so this could impact on how you are able to contact them, and how long it may take them to reply to you. 

You may also want to bring this matter to the attention of local leaders of health committees who meet with local leaders in the NHS .


Who to contact?

Contacting the Chair of Health and Wellbeing and/or the Chair of Joint Health and Overview in your local County Council - You can normally find their contacts by searching your local county or unitary authority and searching meetings of committees where councilliors involved will be listed.

      

Contacting your local Healthwatch is another alternative - asking them how they can help raise awareness with relevant local committees: Find your local Healthwatch | Healthwatch

Finding your local Integrated Care System (ICS) - who are responsible for deciding what care and services are provided in local areas: https://www.england.nhs.uk/integratedcare/integrated-care-in-your-area/ 

Resources to help:

 Microsoft Office document icon SUDEP Action Day 2021 - Health Provider Template Letter (UK)

 

Microsoft Office document icon SUDEP Action Day 2021 - Health Provider Template Letter (International)

Important points to remember:
  • Many health service providers remain under pressure due to the COVID-19 pandemic, so this could impact on how you are able to contact them (online or via post), and how long it may take them to reply to you. 
  • Sometimes contacting the local ICS (who decide which services are available locally), or your local health board/committee at your local council could mean your letter gets attention; as they often meet with local NHS leaders, and have responsibility to the local people in their area. 
  • Sometimes health providers may come back with additional questions or plan to take action because of your letter. SUDEP Action are here to help answer any questions they may have and can also provide further information on work being done on epilepsy deaths – so please put them in touch with us directly.
  • Don’t forget to let us know if you do make contact with and hear back from your local health providers! It is great to know what impact our supporters are having, and knowing which MPs are aware of how these key issues can help us push our campaigns further with Parliament.
Find out more ways you can get involved in SUDEP Action Day here: http://sudepactionday.org/get-invhurrolved/campaigners/