What is SUDEP Action Day?
SUDEP Action Day is a global day dedicated to raising awareness of epilepsy deaths.
Launched by us in October 2014 (as SUDEP Awareness Day), it shines a light on the largest cause of death in people with epilepsy, helping empower people through increased awareness and raise funds for SUDEP research.
Last year’s event, saw over 100 organisations take part globally to help raise awareness of SUDEP and epilepsy risks.
What is the this year's campaign theme?
This year's theme (2022) - #TalkSudepNow
As leaders in SUDEP and epilepsy deaths for over 25 years, SUDEP Action know the topic of SUDEP raises questions and can be worrying for many to think about. But SUDEP Action Day is here to help people take positive steps towards reducing epilepsy risks.
Not everyone with epilepsy is aware of or told about SUDEP (Sudden Unexpected Death In Epilepsy) and epilepsy risks, which can put them in danger of worsening seizures, injury or of dying prematurely. Some health professionals worry that discussing these risks could frighten their patients. But these negative outcomes can be prevented for many people with epilepsy; and openly discussing these risks allows them to make informed choices about treatment and lifestyle and helps them take steps to reduce any risks.
People with epilepsy and their families WANT to be told about SUDEP and epilepsy risks. Many bereaved families were not told about SUDEP and wish that this vital information had been shared as it might have saved their loved one’s life.
This October, let's #TalkSudepNow
Without information there's no conversation. However, by cutting through the myths and misconceptions, talking about experiences and concerns and sharing with others we can all spread understanding about living with epilepsy. We can also spread understanding about SUDEP, what it is and what are the risks.
How can I get involved?
If it's sharing our messaging, your experiences, taking part in our special 5k event, or remembering a loved one - we encourage you take part this October.
For more ideas, help or support, contact us on [email protected]
We look forward to hearing and seeing how you get involved.