SUDEP Action

Making every epilepsy death count
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SUDEP Action Day 2020


What is SUDEP Action Day?

SUDEP Action Day is a global day dedicated to raising awareness of epilepsy deaths. 

Launched by SUDEP Action on 23 October 2014 (as SUDEP Awareness Day), it shines a light on the largest cause of death in people with epilepsy, helping empower people through increased awareness and raise funds for SUDEP research.

Last year’s event, saw over 100 organisations take part globally to help raise awareness of SUDEP and epilepsy risks.


What is the this year's campaign theme?

This year's theme (2020) - #SpeakUp2SaveLives

As leaders in SUDEP and epilepsy deaths for over 25 years, SUDEP Action know the topic of SUDEP raises questions and can be worrying for many to think about. But SUDEP Action Day is here to help people take positive steps towards reducing epilepsy risks.

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The pandemic has highlighted huge inequalities and we know that SUDEP, epilepsy risks and epilepsy deaths are one of the neglected areas, made worse by COVID-19. Thousands of people with epilepsy, their carers and health workers have report through SUDEP Action’s international research project that:

  • epilepsy risks have worsened,
  • people with epilepsy are having more trouble accessing the care and services they need
  • health professionals are worried their patients are not seeking help if they’re epilepsy is getting worse
  • and bereaved families say pain they have lived with for decades has been made worse during 2020

That is why this year we want you to #SpeakUp2SaveLives and encourage vital conversations on epilepsy risks and SUDEP.


How can I get involved?

If it's sharing our messaging, your experiences, taking part in our special 5k event, or remembering a loved one - we encourage you take part this October.

Visit our SUDEP Action Day microsite to access free downloadable materials, and to find out more about how you can get involved.

You can also follow us on Facebook or Twitter and/or join the Facebook event to keep up to date with the latest information.

For more ideas, help or support, contact us on [email protected] 
We look forward to hearing and seeing how you get involved.