Sheffield Primary Care Academic Medical Unit is providing academic support to the Epilepsy Deaths Register. Dr Henry Smithson led the primary care arm of the last National Audit of Epilepsy-Related Deaths.
The unit is developing surveys for The Epilepsy Deaths Register. The first survey will be aimed at capturing the experiences of bereaved families. The unit is working in collaboration with a research team in Australia to compare experiences reported by bereaved families in the UK with experiences in Australia. In addition the unit will be supporting SUDEP Action in developing telephone interviews with families which will be extremely valuable in collecting qualitative information.