SUDEP Action

Making every epilepsy death count
Call us now on 01235 772850

Seizure-alert dogs, anti suffocation pillows and protective headgear


Seizure alert Dogs

We know that being with someone during a seizure may give you additional protection. Some people with epilepsy use seizure alert devices. Some choose to have a seizure dog.
There is only limited research on the benefits of seizure-alert dogs, but they are worth discussing in relation to your own personal circumstances.
 
Your clinician will be best placed to talk to you about benefits and disadvantages of this. You can find out more information about them here
(please note we do not endorse these services)
:

Support Dogs
Telephone: 0114 261 7800
Website: support-dogs.org.uk
Providing support dogs for people aged 16-60.
 

Anti-suffocation pillows

Because many epilepsy-related deaths occur overnight with people found lying face down there is speculation that this position may interfere with breathing and contribute to the deaths. Some people therefore advocate for the use of special pillows to allow better airflow around the face.

However, the use of special pillows has not been proven to prevent death from suffocation or SUDEP.
Using such a pillow cannot guarantee the safety of a person having nocturnal seizures. The use of such pillows is a personal choice.
(please note we do not endorse any products listed below)

The Helpful Hand                                        Sleepsafe Products
Telephone: 01625 424 438                           Telephone: 07092 255 916
Website: www.thehelpfulhand.co.uk             Website: www.sleep-safe.co.uk    
Safety pillows and mobility equipment.        Safety pillows. Extra covers available.
Home assessment available.

Breathe-zy
Telephone: 0161 660 5960
Website: https://breathe-zy.com/
Safety Pillows, Matress Toppers & Cases.


Protective headgear

Protective headgear can be helpful in preventing injury for people with uncontrolled and unpredictable seizures. If you are considering this type of safety device, speak to your clinician.
(Please note we do not endorse any products listed below) 

Aremco                                                              G&S Smirthwaite Ltd
Telephone:  01622 858 502                               Telephone:  01626 835 552
email: aremco@onetel.com                               Website: www.smirthwaite.co.uk
Various sizes, designs and additional               Specialised protective helmets 
features available.                                             tailored to individuals’ needs.                           
Some designs can be made to measure.

Opcare Orthopaedics                                      Thudguard                                       
Telephone:  01235 552 828                               Telephone:  01224 323 674                     
Website: www.opcare.co.uk                               Website: www.thudguard.com
Medical referral needed. Advice available.        Protective hats for infants, designed to absorb &
                                                                           reduce the impact from falls. Also available for
                                                                          older children & adults.

These questions may be helpful in speaking to your clinician:

PDF icon Safety devices questions to ask