SUDEP Action

Making every epilepsy death count
Call us now on 01235 772850


Prevent21 image


In the past 21 years, over 21,000 people with epilepsy have died suddenly and died too young                                                                     

What is Prevent21?
SUDEP Action’s Prevent21 campaign shines a light on this shocking disaster bringing it out of the shadows and to the public’s attention.

"Every one of the 21 people who died this week is worth fighting for. Helping people take action to save lives now, and in the future – is part of our DNA. Join us in this life- saving campaign." 
Jane Hanna OBE, SUDEP Action CEO


We helped 11,000 people last year.
With YOUR help, we can speed up what needs to happen over the next four years of this campaign:

Targeting cause and prevention of deaths
Support our dedicated programme of research and surveillance that brings knowledge to save lives now by shining a light on key risk factors, conversations, and actions. As well as, contributing to research to help in the near future.  

Keeping people safe now
Changing more hearts and minds to include risk and tackle sudden deaths in the young. Bringing vital knowledge to support life-saving conversations. Reaching GPs, ambulance crews and other professionals with up to date training and tools from an expert UK faculty, as well as reaching the wider public.


              Checklist for clinicians  



EpSMon         Free self-monitoring app       

         Coverage on Channel 4News (November 2017)



        Training package developed for paramedics



Helping Families after a death  
Families tell us our rapid support information after a death and ongoing support, is a life-line. Bereavement 
counselling, supporting advocacy and helping families grieve however they choose to be involved.



Join the SUDEP Action fight today
Will you support our families and help save a life?

Let’s take action together. 

Here are just a few ideas:

21 companies
21 sports clubs
21 sponsored events
21 dress-down days
21 Bake Offs and cake sales
21 car washes
21 unique events
21 of anything that will help save lives



How to make a donation
 can help Prevent21 by texting PREVENT followed by £5 to 70085* or send a cheque donation to the SUDEP Action address (payable to SUDEP Action). This will cost £5 plus a std rate message. Alternatively, you can opt to give any whole amount up to £20For more information about other ways you may like to get involved please contact our fundraising team, email or call 01235 772850.

*UK numbers only, texts are charged at your mobile phone operator’s standard rate. You must be 16 or over and please ask the bill payer’s permission. For full terms and conditions and more information, please visit 


Downloadable resources
You can change the cover images of your social media channels using any of the images below:

Facebook cover image
Twitter cover image

Here are the A5 Poster and Campaign Leaflet which you can download and distribute.


Get involved 
Keep track of what's happening with the campaign by following us on FacebookTwitter or Instagram.
Or tell us how you’re getting involved by using the campaign hashtag  #prevent21 


More details and information will be released very soon.


Knowledge saves lives!

Prevent21 logo