SUDEP Action

Making every epilepsy death count
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Patient Safety Campaign against medication shortages

                                  
                                       Pill cross
                                                                              #DontMessWithMyMeds

Epilepsy, like many long-term health conditions, comes with certain risks. The epilepsy medication people take, plays a really important role in reducing risks and helping to control seizures. However, sometimes shortages of medications happen, and this can have a dangerous impact on people living with epilepsy.

Add to this, that there are people with epilepsy and their families, who are also not aware of
the potentially life-threatening risks linked to the condition - and we have a very worrying picture. 

 

"If you start messing about with medications, you take away my ability to work, look after my child, it impacts my family." -  a young mother with epilepsy.

 

Medicine shortages seem to be happening more often, and could become more likely with big national changes like Brexit

It is vital that people with epilepsy, their families and their clinicians know if or how medications may be affected by medication shortages, and what should happen if this applies to them.

Knowledge saves lives.

With knowledge and time to prepare, positive actions can be taken to reduce additional risks people with epilepsy face because of shortages. Without this knowledge their risks could increase and the number of potentially avoidable epilepsy deaths already happen each year could rise

With over 21 epilepsy deaths happening each week in the UK, we cannot stand by and let people with epilepsy be put at more risk.

This is why SUDEP Action has led a coalition of epilepsy and neurology organisations since early January 2019, to campaign on this issue, calling for transparency from Government about medication shortages (regardless of whether they may be linked to Brexit).

 

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