The Partners Against Mortality in Epilepsy (PAME) conference is a biannual event that aims to increase understanding of mortality in epilepsy—particularly Sudden Unexpected Death In Epilepsy (SUDEP). Last year, SUDEP Action Chief Executive Jane Hanna OBE, Deputy Chief Executive Karen Osland, and International Research Officer Rosie Panelli spoke at the event.
The conference brings together a diverse group of stakeholders including professionals (clinicians, basic science researchers and others), public health officials, people with epilepsy and their families/caregivers and families bereaved by epilepsy. The meeting is attended by non-profit organizations that provide patient/family support and lead advocacy efforts, scientists investigating mortality in epilepsy; early career fellows who are developing their research specialties and portfolios and research funders.
PAME 2016 - SUDEP Action References