Online Epilepsy Memorial Day on Wednesday 6 May 2020, is a global opportunity to remember all those who have died from epilepsy, across our social media platforms.
It's the most special day in our charity calendar. Now coming up to our fifth event in 2020, SUDEP Action launched this special day enabling the bereaved community to connect around the world.
How you can get involved
Online social media event
SUDEP Action will be sharing posts on social media platforms throughout the day, as well as before and after.
Many bereaved people from all over the world will join together to share photos, poems and memories of their loved ones, who have lost their lives to epilepsy.
Follow us on Facebook today and/or join the Facebook event to keep up to date with the day's activity.
Lighting a candle
We understand that not everyone is on social media, and will not be able to take part in this way.
So, as well as the usual online ways to be involved, we are inviting everyone at home to light their own candle of remembrance at 7pm on 6 May.
Online Tributes
Another way you can get involved in the event, is to create an online memorial on the SUDEP Action MuchLoved memorial page.
Our memorial page has been specially designed to offer you somewhere to celebrate the life of someone you have lost to epilepsy and a place to remember them. This means you can leave a lasting tribute to someone, which family and friends can contribute to.
Simple to set up, you can upload photos, poems, videos, music and memories. Anyone can set one up and everyone can contribute their thoughts and memories.
On all our tribute pages created before Thursday 30 April 2020, we will light their rememberance candles on Online Epilepsy Memorial Day - which will continue to burn for two weeks.
If you would like more information or need help creating an online tribute, contact our team on [email protected]
Resources and further info
Further details, information and resources about the event will be released closer to the date. Keep an eye on this webpage and our Facebook page.
If you are outside the UK, we can provide email support, or where available, details of a service in your country.
