SUDEP Action

Making every epilepsy death count
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Online Epilepsy Memorial Day



Online Epilepsy Memorial Day on Wednesday 6 May 2020, is a global opportunity to remember all those who have died from epilepsy, across our social media platforms.

It's the most special day in our charity calendar.  Now coming up to our fifth event in 2020, SUDEP Action launched this special day enabling the bereaved community to connect around the world.


Order of the day

8am onwards - We share our first post of the day on Facebook where you're invited to share photos, poems and memories of someone special you have lost to epilepsy.

7pm - Join us in lighting a candle at home to comemorate those who have died from epilepsy. Our CEO, Jane Hanna OBE, will be sharing lighting a candle on our Facebook page and we would love for you to share with us your own photos if you would like to.

2pm – A special reading from Dame Stephanie Shirley CH for Online Epilepsy Memorial Day. Dame Stephanie Shirley CH was due to give a reading at our 2020 Memorial Service which has had to be postponed. Her reading will now be shared with all of our supporters on our Facebook page at 2pm on Wednesday 6 May.

12am - We close the day with a special poem.


How you can get involved 

Online social media event on our Facebook page

SUDEP Action will be sharing a main post on our social media platforms on the 6 May. If you would like to get involved online, you can join us on our main page on Facebook.

Many bereaved people from all over the world will join together to share photos, poems and memories of their loved ones, who have lost their lives to epilepsy. 

Follow us on Facebook today and/or join the Facebook event to keep up to date with the day's activity.

You can also change your Facebook cover to the following image to show your support. Just right click on the image and save:

Online Epilepsy Memorial Day Facebook Cover


Join us in lighting a candle at 7pm on 6 May

We understand that not everyone is on social media, and will not be able to take part in this way.

So, as well as the usual online ways to be involved, we are inviting everyone at home to light their own candle of remembrance at 7pm on 6 May.

Our CEO, Jane Hanna OBE, will be sharing lighting a candle on our Facebook page, and we would love for you to share with us your own photos if you would like to. Please share your photo under our post at 7pm on our Facebook page. 


Online tributes & virtual candles

Another way you can get involved in the event, is to create an online memorial on the SUDEP Action MuchLoved memorial page.
Our memorial page has been specially designed to offer you somewhere to celebrate the life of someone you have lost to epilepsy and a place to remember them. This means you can leave a lasting tribute to someone, which family and friends can contribute to.

Simple to set up, you can upload photos, poems, videos, music and memories. Anyone can set one up and everyone can contribute their thoughts and memories. 

On all our tribute pages created before Thursday 30 April 2020, we will light their rememberance candles on Online Epilepsy Memorial Day - which will continue to burn for two weeks.

If you would like more information or need help creating an online tribute, contact our team on [email protected]  


Resources and further info

Further details, information and resources about the event will be released closer to the date. Keep an eye on this webpage and our Facebook page.

If you have been affected by an epilepsy death, and would like to speak to someone, please contact the SUDEP Action support team on 01235 772852 or [email protected]

If you are outside the UK, we can provide email support, or where available, details of a service in your country.



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