SUDEP Action

Making every epilepsy death count
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SUDEP Action have permission from the families involved in all the stories on our website. Please do not reproduce any of these images or stories from our site, without our expressed permission.

Alan Davies
I have (had) two sons, one born 1984, one in 1985. Read more
On January 28, 2022, our sweet 16-year-old daughter Alison passed a Read more
It was my birthday Weekend, and a lovely sunny day. Read more
This is to warn others who suffer with epilepsy… Read more
Our son Anthony John William Ellis (A Read more
What to say? How to describe​ you Anze? Read more
Bea only ever had four seizures in the past. Read more
On a wet spring morning in May 2004, just three months short of her twelfth birthday, Becky became a victim of SUDEP. Read more
Benjamin was born on Christmas Eve 1989. Read more
Beth, as she liked to be known, died from SUDEP on the 2nd of August, 2010, aged 17. Read more
Blair Morton
A 20-year letter for Blair Read more
Until the 7 October 2011 Charlie was a perfectly fit and healthy 10 year old boy. Four days later on the 11 October 2011, a week after his 10th birthday our gorgeous little boy died. Read more
Chris B
My son Christopher was my 32nd birthday present, a healthy, happy b Read more
Chris T
My son Chris was a bright, lovely child when he was growing up. Read more
Christopher Stephen Gillies
Christopher Stephen GilliesDecember 4, 1985 - December 28, 2015 Read more
My beautiful daughter Clare Louise Mackmin (nee Laycock), was just Read more
In 1991, Colette began to suffer from seizures. Given Dianne’s death, we were terrified that we could lose her. Read more
Our sister Dianne suffered from severe epilepsy for most of her life. Her seizures were unpredictable, and never fully controlled by medication. Read more
Our Drew. How do I describe our Drew? Read more
Elizabeth appreciated the wonders of life such as nature, had high Read more
Our younger daughter Emily was beautiful, joyful and very much love Read more
My daughter Emily was a bright, pretty, sporty, funny, popular and mischievous girl. I always thought she’d cause me trouble but I never imagined this. Read more
Ethan was born normal and healthy. Read more
Eve, the youngest of our two daughters, died aged 21 in 2005 whilst studying Radio & TV Production at Staffordshire University. Read more
My son Felix was a beautiful, creative, gentle and loving young man Read more
My mum Fidan was one of those people who were always full of life, Read more
Our daughter Georgie was born in 1980.  Read more
Hannah - My Story
My daughter, Hannah Louise was born 26th May 1992.  She weighed ju Read more
A decade ago, I was a graduate student in the PhD program at Univer Read more
My son was my second child. A much wanted younger brother to Georgina. Born in England, he grew up in Wales and considered himself to be a Welsh man. Read more
Hope was born on the 15th March 2005. Read more
I lost my girl Isabella (Bella) aged just 16 in June 2018. Read more
Jack was an only child. He died on 23 December 2010, aged 20. He was full of life, well-liked by his peers and he had a great sense of humour. Read more
It is still unre Read more
Jared Grayson Exley was born on 2nd September 2000. Read more
Our dear sweet Jenny, affectionately known as Jenny Wren.  Jenny wa Read more
My daughter Johdi was 17 when she died in 2017.  Read more
Jon was larger than life in every way; he loved people, loved life and always looked for the good in everyone. Read more
Karen was born in April 1975 and died in February 2012. Read more
Everyone who knew Kathryn was captivated by her personality, intelligence, charm and beauty. She was loved by everyone; a treasured daughter, sister, granddaughter, auntie and friend. She was on loan from the angels and they wanted her back. Read more
Katie was a 20 year-old trainee nurse at UWE and had been having two seizures a year on average since the age of 16. Both she and her family thought her epilepsy was well under control with medication. Read more
Kim was a beautiful and caring girl, with a great sense of humour. Read more
Liam was a very healthy baby. Read more
Maisie was a happy child and a happy young adult, it is simply impo Read more
Marcaylin was 18 months old when she had her first seizure. Read more
Matt was the most kind, caring, funny, thoughtful, wonderful person Read more
Max was born on 4 August 2009 at 35 weeks, it was a quick labour with ventouse delivery, as my wa Read more
My beautiful angel Maycee Marie was a vibrant, loving amazing litt Read more
This is my son Mislav, born in 1995, he was a twin. Read more
Mitch died on 3rd Read more
In October 2015, my daughter Natalie died at the age of 31, leaving our two grandchildren aged 2 Read more
Nik started having seizures two days before her seventh birthday. Read more
On the 12th February 2011, at approximately 6:00pm, our brother Ravin J Dattani sadly passed away. He was 29 years old. Read more
Rebecca Hayward
My SUDEP Story Read more
On the Tuesday 30th June 2015, my life changed forever, when at 7.30 a.m. Read more
When my younger sister Rowena was 6 years old she was diagnosed with Nocturnal Epilepsy. Read more
Roy and Shirley
I first met my husband Roy in 1980. I was 16 and he was 23. Read more
My son Ryan, as we called him, or Barry Ryan Patten as he was name Read more
October 2, 2007 we awoke to find that our two and a half year old son, Rylee, had passed away in the middle of the night. Read more
Sam was a veteran who served in the British Army until he was medic Read more
Samantha died on The 4th December 2004. Read more
Sean Slootweg
This was written on the date Seán was born – but 10 years after he was taken from us. Read more
Silas was a very happy and active boy with a great sense of humour. Read more
My whole world changed with one phone call in August 2010. My eldest son, Stephen, had died suddenly. The sheer disbelief, shock and bewilderment was powerfully overwhelming. Read more
“10 Seconds on a Zebra" Read more
People do not die from epilepsy. That is what we were told when William died as a result of a seizure in 1988. Read more