Stories
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SUDEP Action have permission from the families involved in all the stories on our website. Please do not reproduce any of these images or stories from our site, without our expressed permission.
On a wet spring morning in May 2004, just three months short of her twelfth birthday, Becky became a victim of SUDEP. Read more
Beth, as she liked to be known, died from SUDEP on the 2nd of August, 2010, aged 17. Read more
Until the 7 October 2011 Charlie was a perfectly fit and healthy 10 year old boy. Four days later on the 11 October 2011, a week after his 10th birthday our gorgeous little boy died. Read more
In 1991, Colette began to suffer from seizures. Given Dianne’s death, we were terrified that we could lose her. Read more
Our sister Dianne suffered from severe epilepsy for most of her life. Her seizures were unpredictable, and never fully controlled by medication. Read more
My daughter Emily was a bright, pretty, sporty, funny, popular and mischievous girl. I always thought she’d cause me trouble but I never imagined this. Read more
Eve, the youngest of our two daughters, died aged 21 in 2005 whilst studying Radio & TV Production at Staffordshire University. Read more
My son was my second child. A much wanted younger brother to Georgina. Born in England, he grew up in Wales and considered himself to be a Welsh man. Read more
Jack was an only child. He died on 23 December 2010, aged 20. He was full of life, well-liked by his peers and he had a great sense of humour. Read more
Jon was larger than life in every way; he loved people, loved life and always looked for the good in everyone. Read more
Everyone who knew Kathryn was captivated by her personality, intelligence, charm and beauty. She was loved by everyone; a treasured daughter, sister, granddaughter, auntie and friend. She was on loan from the angels and they wanted her back. Read more
Katie was a 20 year-old trainee nurse at UWE and had been having two seizures a year on average since the age of 16. Both she and her family thought her epilepsy was well under control with medication. Read more
Max was born on 4 August 2009 at 35 weeks, it was a quick labour with ventouse delivery, as my wa Read more
In October 2015, my daughter Natalie died at the age of 31, leaving our two grandchildren aged 2 Read more
On the 12th February 2011, at approximately 6:00pm, our brother Ravin J Dattani sadly passed away. He was 29 years old. Read more
When my younger sister Rowena was 6 years old she was diagnosed with Nocturnal Epilepsy. Read more
October 2, 2007 we awoke to find that our two and a half year old son, Rylee, had passed away in the middle of the night. Read more
This was written on the date Seán was born – but 10 years after he was taken from us. Read more
My whole world changed with one phone call in August 2010. My eldest son, Stephen, had died suddenly. The sheer disbelief, shock and bewilderment was powerfully overwhelming. Read more
People do not die from epilepsy. That is what we were told when William died as a result of a seizure in 1988. Read more