SUDEP Action

Making every epilepsy death count
Call us now on 01235 772850

I've so many questions

People have many questions after an epilepsy related death, regarding the circumstances leading up to it or about what will happen next.

It is difficult to answer certain questions without knowing the individual circumstances, but below are some of the questions that our support team may be able to help you with.  Please contact them on 01235 772852 or email:  It may be helpful to you to understand a little more about what has happened and why.

  • Why is there going to be an inquest?
  • What investigations will there be?
  • How long will I have to wait?
  • I ’m not sure that they were taking their medication properly what should I do?
  • How can it be epilepsy related, they hadn’t had a seizure for such a long time?
  • How can it be epilepsy related, there was no evidence of a seizure?


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