SUDEP Action

Making every epilepsy death count
Call us now on 01235 772850
Supporter Cover image

Support Services

If you have been bereaved by an epilepsy-related death, please contact us on 01235 772852 or email [email protected]

Lives Cut Short

Latest research - Lives Cut Short

Learn more about the report on urgent measures to tackle deaths in epilepsy and support the bereaved during the COVID-19 pandemic

SUDEP Action Day 2021

Whether it's sharing our messaging, your experiences, taking part in our special My Way to 5k event, or remembering a loved one - we encourage you take part this Wednesday 20 October - it's #Time2Change

seek the truth

What is SUDEP?

Sudden Unexpected Death in Epilepsy (SUDEP) is when a person with epilepsy dies suddenly and prematurely and no reason for death is found.

My Story

We invite you to share your story

Your experience has the power to make an impact and help SUDEP Action to break down barriers for change. Contact us to learn more.

Cherry blossom garden

A MuchLoved Tribute

Our memorial pages have been specially designed to offer you somewhere to remember the life of someone you have lost. This means that you can leave a lasting tribute to someone which family and friends can contribute to.

EDR

Epilepsy Deaths Register

Our Epilepsy Deaths Register (EDR) website is currently undergoing maintenance. If you've not yet contributed to the EDR but would like to, the site will be up and running again as soon as the maintenance is completed.

We need your help - COVID-19 research surveys

We are committed to making sure every voice is heard. If you're interested in contributing to our research on COVID-19 and #epilepsy, take a look at our international research projects.

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Welcome to SUDEP Action

Welcome to SUDEP Action

There are at least three epilepsy-related deaths a day in the UK. 

SUDEP Action is dedicated to raising awareness of epilepsy risks and tackling epilepsy deaths including Sudden Unexpected Death in Epilepsy. We are the only UK charity specialised in supporting and involving people bereaved by epilepsy. 

Our services include bereavement support, counselling, help with understanding the inquest process and in collaboration with UK research teams, the involvement of bereaved families and professionals in research through the Epilepsy Deaths Register. If you have been affected by an epilepsy death, please contact our support team on 01235 772852.

SUDEP and Seizure Safety Checklist