We campaign on behalf of those bereaved by epilepsy
- We raise awareness locally, nationally & internationally of SUDEP, Epilepsy-related deaths and the need to be aware of epilepsy risks.
- We also work to ensure public policy reflects these issues and strive to make our voices heard. This isn't possible without your support & involvement.
See below how you can get involved in campaigning & policy work - make a positive difference in our journey to make every epilepsy death count!
Westminster MP Event - 17th October 2017
As part of a larger PR campaign, SUDEP Action are holding an event for MPs in London and we need your help to make sure MPs from across the country know about the event & attend if they can! Find out how you can help here.
Help us raise awareness among Health Professionals & MPs so they can become our Champions4Change; driving forward our mission of helping people with epilepsy stay safer, & tackling epilepsy deaths.
CALL FOR OPENNESS
The Call for Openness campaign is aimed at raising awareness and saving lives. People with epilepsy need to be fully informed if they are to make the right lifestyle choices to reduce their risk of SUDEP.
THE EPILEPSY DEATHS REGISTER
The Epilepsy Deaths Register is a single point for reporting all epilepsy-related deaths. By raising awareness of the register, you can help to gather vital information into SUDEP and epilepsy-related deaths.
An important and powerful way for you to join our campign is by sharing your story with us; with your help we are able to shout louder.
We work with policy makers across the UK to make sure the voice of those bereaved by epilepsy is heard.
COFFEE CLUB MEETINGS
The Coffee Club meetings are held around the country by some of our Active Supporters. They are informal way to meet others who have been bereaved by epilepsy.
Find out about our past campaigns and policy work.
Information guides, links and other useful resources you may need when getting involved with campaigning and policy work with us.
REGISTER YOUR INTEREST
Think you might be interested in campaigning and policy work for us? That’s great! Find out more here. You can also find out details about becoming an Active Supporter or Ambassador for the Charity.