SUDEP Action

Making every epilepsy death count
Call us now on 01235 772850

EpSMon Frequently Asked Questions


Who is EpSMon for?

EpSMon is for adults (18+) with epilepsy to help them self-manage their epilepsy and risks in between medical appointments. The app is based on information from the SUDEP and Seizure Safety Checklist tool for clinicians which draws on research based on adults with epilepsy that has been reviewed and updated annually by a UK-wide development group of experts. We hope in future to develop a version of the Checklist for clinicians who support children with epilepsy, which may result in a children's version of EpSMon; however the project is almost entirely dependent on funding from bereaved families (via SUDEP Action), so additional funds would be required to help us do this.

Children that are moving (transitioning) to adult services or leaving home for university might value information in EpSMon as well as our leaflets for young people.

I have epilepsy but am currently seizure free – do I need to use EpSMon?

Yes. You need to be seizure-free for a long time before a doctor is encouraged to discuss withdrawing medication (if you think this applies to you - you should make an appointment to speak to the clinician who supports you with your epilepsy if you do not have one already scheduled).

Even if you're currently seizure free it is important that you attend any annual review or planned appointments for your epilepsy so any changes to your lifestyle whic may affect your epilepsy or risk levels can be monitored. You can also discussr your ongoing care and treatment options.

If you have not had an annual review or appointment with the clinician who monitors your epilepsy in over a year, speak to them about this.

How do I download EpSMon onto my phone?

EpSMon is available on iOS and Android devices. Just visit the app store for your device and search for EpSMon. Alternatively click the relevant button under the video on www.sudep.org/epsmon.

How much does EpSMon cost?

EpSMon is free.

The project has been funded by bereaved families who support SUDEP Action and have lost a loved on to epilepsy. They hope that by supporting this project, they can help people living with the condition better self-manage their epilepsy and stay safer. 

I don’t live in the UK, can I still download the app?

Unfortunately the app is currently only available in the UK as the project is currently funded almost entirely by bereaved families in the UK. However we hope to bring it to other countries in future with support. Follow SUDEP Action on social media or sign up to the Charity's e-newsletter to be kept up to date of future plans for EpSMon. 

I’ve downloaded the app but am now not sure what to do – where can I get help?

Take a look at our extra information & resources section for useful information for people who have just downloaded the app. If you still require support please contact the EpSMon helpline via epsmon@sudep.org or call 0330 088 2122.