General
Help shape the future of SUDEP research
The National Institute for Health and Care Research (NIHR) is inviting people to suggest health and care research questions that they think need answering.
SUDEP Action
News
-
Fundraising“The more people who get involved, the louder our voice becomes”
Natalie takes on a sponsored paraglide in memory of her sister Kathryn
FundraisingTaking to the skies in memory of Erin
Emma Taylor wants people to know about SUDEP and to understands the risks associated with epilepsy.
Fundraising‘Andy is the inspiration through every step’
Kim Mcentee says she’s proud to represent SUDEP Action on the Great North Run.
GeneralBetter healthcare systems needed to support ‘honest conversations’
SUDEP Action tools, such as the Checklists, need to be integrated into care systems, rather than just made available.
GeneralNew EpSMon app creates lasting legacy for Shane
Shane Corrigan died of SUDEP in 2018. Funds raised in his name have supported the development and rollout of the EpSMon app.
GeneralSUDEP Action Launches EpSMon app
Mobile technology is becoming an established tool in patient self-care and EpSMon is a great example of this.
GeneralGovernment pledges to work with SUDEP Action on epilepsy risks
Westminster meeting with Minister results in number of promises to collaborate with SUDEP Action.
GeneralNew record dedicated to ‘those affected by SUDEP’
Band member Scott Hardcastle lost his sister Samantha to SUDEP in 2004.
GeneralValproate; guilty until proven innocent?
Why UK rules on a life-saving epilepsy medicine don’t make sense
For one-to-one support after an epilepsy death contact our support team today
We provide the only support line for people bereaved by an epilepsy death and offer access to qualified counselling. Our dedicated support team has a special interest in, and understanding of, sudden and traumatic death.
