SUDEP Action

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EpSMon Frequently Asked Questions


Who is EpSMon for?

EpSMon is underpinned by a comprehensive review of research based on adults with epilepsy, which is updated annually by a UK-wide development group of experts, GPs and people with epilepsy. EpsMon is appropriate for use in adults over 18. We are in the process of developing a Check List for children, but the first priority of the EpsMon project is the over 18’s because young adults are most at risk. Children that are transitioning to adult services or leaving home for university might value information on EpsMon as well as our leaflets for young people.

I have epilepsy but am currently seizure free – do I need to use EpSMon?

Yes. You need to be seizure-free for a long time before a doctor is encouraged to discuss withdrawing medication. It is important that you attend any annual review or planned appointments about your epilepsy so that your risk can be monitored and you can have an opportunity to consider your ongoing care and treatment options. If you have not attended an annual review speak to your doctor about this.

How do I download EpSMon onto my phone?

If you have an iPhone you can either visit the App Store from the main screen on your phone, via your iTunes account on your computer or by clicking the link at the bottom of this page. You can then search for the app and download it straight to your phone (or other mobile device such as an iPad).

How much does EpSMon cost?

EpSMon is free for both iOS and Android users.

I don’t live in the UK, can I still download the app?

Following the launch we will be analysing user feedback, with a view to launching outside the UK as soon as possible. For those of you who live outside of the UK but still wish to know more, please contact  to register your interest and we will keep you informed about the future release of EpSMon in your country. 

I’ve downloaded the app but am now not sure what to do – where can I get help?

Take a look at our extra information & resources section for useful information for people who have just downloaded the app. If you still require support please contact the EpSMon helpline via or call 0330 088 2122.