SUDEP action is using funds raised by Kt’s fund to commission a local team of researchers and health managers to influence epilepsy service development in Cornwall.
The project will gather data on two important areas that ought to meet with current NHS priorities to tackle early mortality and unnecessary use of accident and emergency departments.
The project will:
- Describe the factors influencing SUDEP deaths across a local population.
- Describe the factors influencing people attending hospital with a seizure-related emergency.
- Engage the interests of commissioners, policy makers and other local stake holders. The project will produce a report targeted at this local audience that will be additional to published academic research papers.