SUDEP Action

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Tom’s Orange Day at school raises awareness and funds for SUDEP Action

Eleven year old Thomas Samuel held an Orange Day at school to raise awareness and funds for SUDEP Action. Thomas gave a presentation during his school assembly at Heathfield, East Sussex.   

Tom said: “I asked my school if we could do something to help raise awareness of SUDEP in memory of my Auntie Diane who died from SUDEP in 2004.  Sammy Ashby from SUDEP Action helped me with a power point presentation which I presented in my school assembly, I asked the pupils questions and if they got the answer right I gave them a SUDEP Action memory wristband or badge.  The following Friday we had an 'Orange Day' where everyone could wear orange and bring in a donation.  I hope more people now know about SUDEP. I hope I have helped.” 

Sammy Ashby, Policy and Development Manager for SUDEP Action commented: “It is great to have young people like Tom raising awareness for us in Schools. It is so important that people know about SUDEP Action and the work we do; Tom has done a brilliant job doing this in memory of his aunt.”