SUDEP Action

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The Robinsons sail around the UK in memory of Helena


Yvonne and John Robinson are sailing round the UK to raise money for epilepsy research and education in memory of John’s daughter, Helena.   Helena died of Sudden Unexpected Death in Epilepsy (SUDEP) in 2005.

Epilepsy is one of the top ten killers in the UK.  About 500 of 1150 seizure-related deaths each year in the UK are SUDEP deaths which are sudden and unexpected.  About 40% of these sudden deaths could be avoided through education and regular use of the right medication.  

Yvonne and John set sail on 10th May 2013 with Paul Williams who is accompanying them in the first leg of their journey round Lands Ends to South Wales.  

They have set up a blog to provide regular updates on their journey at:   They will be sailing round the four countries of the United Kingdom - England, Wales, Northern Ireland and Scotland. 

“We are delighted that Staunton Harold Sailing Club have nominated SUDEP Action as their Comodore's Charity for 2012/2013 and we look forward to raising a substantial sum for this most worthwhile of charities.” John Robinson.

They expect to cover the 2500 mile journey in four months and will be stopping at about 50 or 60 places.  They are taking the trip in short stages to enjoy the beauty of the coast line, towns and villages.  

Yvonne and John are hoping to raise money through sponsorship and donations.  If you want to take part in any part of their trip or simply meet up en route then please contact them at [email protected]