SUDEP Action

Making every epilepsy death count
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January 2016 blog

A place to thank, appreciate and celebrate our fundraisers.

Some brilliant fundraising events took place in February. 

Thomas Samuel managed to raise both funds and awareness in memory of Diane Croft. Thomas commented: “I asked my school if we could do something to help raise awareness of SUDEP in memory of my Auntie Diane who died from SUDEP  in 2004.  Sammy Ashby from SUDEP Action helped me with a power point presentation which I presented in my school assembly, I asked the pupils questions and if they got the  answer right I gave them a SUDEP Action memory wristband or badge.  The following Friday we had an 'Orange Day' where everyone could wear orange and bring in a donation.  I hope more people now know about SUDEP. I hope I have helped.” 

The 2nd Owen Williams Memorial Quiz was held on Saturday 23rd January in the Village Hall, Blythburgh, Suffolk.  Now in its 2nd year the quiz was set up by  Ro Williams in memory of her son Owen who died in July 2014 aged just 39. Ro informed us: “A packed hall of 18 teams enjoyed a night of fun but challenging questions, a raffle and a fish and chip supper. Owen was a DJ and trivia enthusiast so it was fitting that the winning team not only included Owen’s sister Kerry but was named after his DJ nickname – DJ Swill. The event is held annually to ensure that Owen’s memory is kept alive and to raise money for a worthy cause. Anyone interested in entering next year’s quiz can register their interest by emailing ro@blythburgh.plus.com”. Pictured is Ro Williams (left of pic) presenting the trophy to the winning team – DJ Swill in da House (L to R Kerrie McGrory, Kerry Burn, Dave Wright and Tony Burn.)

Zac Guyer, Ben Morgan, David Morgan, Dean Porter, Joseph Twitchen, Toby Remington, Joe Mullender, Anastasia Pillar, Gemma Swan, Eleanor Morrison, David Thirkeld, Penny Harper and Michael Murray from Churcher’s College braved a Hellrunner obstacle race  in memory of former student Ed Vergette. Michael Murray, staff member at Churcher’s College, informed us: “On Friday 16th January twelve students and two members of staff from Churcher’s College, Petersfield, ran the formidable Hellrunner. The race comprises mud, hills, and bogs, including the notoriously freezing, neck-high ‘Bog of Doom.’  The runners raised money for SUDEP in memory of a recent Churcher’s pupil who died from SUDEP.  On seeing the photos, many gave generously to the cause. Joe Mullender gave an impressive performance, completing the grisly race in 47th place with a time of 1.39.09.”

A very big thank you and well done to all of the January fundraisers. We really appreciate your help. 

If you have taken part in a fundraising event in January and would like to be included in this blog then not to worry, it is not too late. Please email fundraising@sudep.org to let us know about your event. 

If you have been inspired to take part in a fundraising event then let us know, we are happy to help with advice and materials. Email fundraising@sudep.org with your plans or questions. 

Rachel and Katie


Most of our fundraisers are fundraising on behalf of a family member or friend who has died.  As we celebrate the success of our fundraisers, we keep in our thoughts their loved one who is no longer with us.