Skip to content
News
Shop
Contact
Bereavement support team: 01235 772 852
General enquiries: 01235 772 850
  • Get Support
    Get support
    Our services include free bereavement support, counselling and help with understanding the inquest process.
    Get Support
    Support services
    • Bereavement support
    • Understanding grief
    • Questions after a death 
    • Support with inquests & investigations
    • Policy work
    Resources
    • My story
    • Meeting others
    • Leave a tribute
    • I'm moving forward
  • Learn
    Learn
    We keep learning from research and sharing information about epilepsy risks to help save lives.
    Learn about SUDEP
    Epilepsy risks
    • Epilepsy safety
    • What is SUDEP?
    • Epilepsy deaths
    • Managing seizures
    • First aid for epilepsy
    • Lifestyle & risks
    • Risk in childhood & adolescence 
    Tools
    • EpSMon app
    • Learning disability resources 
    • SUDEP and Seizure Safety Checklist
    • Children’s SUDEP & Seizure Safety Checklist
    • Safety devices
    • Leaflets & downloads
    Research & Education
    • About research
    • Past projects
    • Guidelines & reports
    • Health professional training
    • SUDEP global conversation 
  • Epilepsy Deaths Register
  • Get Involved
    Get involved
    Your support helps make a different to others.
    Get involved
    How to give
    • Donate
    • Regular giving
    • Support from trusts
    • Leave a gift in your will
    Get Involved
    • Our events & campaigns
    • Fundraise for us
    • Sponsored events
    • London Marathon 2026
    • Volunteer for us
    • Workplace giving
    • Recycle for us
  • About Us
    About us
    We are a charity supporting and working alongside those whose loved ones have died suddenly from an epilepsy-related death.
    About us
    The charity
    • About SUDEP Action
    • Our history
    • Our team
    • Our trustees
    • Our strategy
    • Our president & vice presidents
    • Who we work with
    News
    • Latest news
    • Annual reports
Get support Donate
Share
Contact confirmation - SUDEP Action
  • Copy link
  • Email
  • Facebook
  • Twitter
  • LinkedIn
  • Skype
  • Reddit
  • WhatsApp
  • Pocket
  • Pinterest
Home
  • Get support

    Support services

    • Bereavement support
    • Understanding grief
    • Questions after a death 
    • Support with inquests & investigations
    • Policy work

    Resources

    • My story
    • Meeting others
    • Leave a tribute
    • I’m moving foward
  • Learn

    Epilepsy risks

    • Epilepsy safety
    • What is SUDEP
    • Epilepsy deaths
    • Managing seizures
    • First aid for epilepsy
    • Lifestyle & risks
    • Risk in childhood & adolescence 

    Tools

    • EPSMON APP
    • Learning disability resources 
    • SUDEP & seizure safety checklist 
    • Children’s SUDEP & seizure safety checklist
    • Safety devices
    • Leaflets & downloads

    Research & Education

    • About research
    • Past projects
    • Guidelines & reports
    • Health professional training
    • SUDEP global conversation 
  • Get involved

    How to give

    • Donate
    • Regular giving
    • Support from trusts
    • Leave a gift in your will

    Get Involved

    • Our events
    • Fundraise for us
    • Sponsored events
    • London Marathon 2026
    • Volunteer for us
    • Workplace giving
    • Recycle for us
  • About us

    The charity

    • About SUDEP Action
    • Our history
    • Our team
    • Our trustees
    • Our strategy
    • Our president & vice presidents
    • Our partners

    News

    • Latest news
    • Annual reports
Epilepsy Deaths Register
News
Shop
Contact us
Search
Get support
Bereavement Support Team: 01235 772852
General enquiries: 01235 77285

Thank you for contacting us.

We will get in touch with you shortly.

Back to home

Latest news

All News

Find out what’s been happening within the charity in recent months and read more about our work and the projects we’re involved in.

General

‘Together, as a movement, we were hard to ignore’

Catherine and Chris’s son Matthew died suddenly and unexpectedly in November 1991. He was just 21 and apart from having epilepsy, otherwise fit and healthy.

General

New publication identifies priorities for SUDEP research

SUDEP Action has contributed to a new research paper published in Epilepsy & Behavior.

General

Why SUDEP Action matters to me

Patricia Odd shares her experience of finding SUDEP Action after losing her daughter Katy.

General

2002: How we took epilepsy deaths out of the shadows

Still widely cited and used today, the National Sentinel Clinical Audit of Epilepsy-Related Deaths found systemwide failures in the provision of epilepsy care.

Uncategorized

Foundation launches advocacy pilot scheme

As part of the development of this project, they would like people to take part in a survey and complete the questionnaire.

Events

SUDEP Action remembers those who have lost their lives to epilepsy with London Memorial Service

The service was attended by over 200 people who travelled from all parts of the UK to remember and pay tribute to their loved ones.

18 Newbury Street, Wantage,
Oxfordshire, OX12 8DA

+44(0 )1235 772850
[email protected]

Socials
Get Support
  • Bereavement support
  • Understanding grief
  • Questions after a death 
  • Support with investigations
Learn
  • About research
  • Epilepsy Information
  • Past projects
  • Guidelines & reports
  • SUDEP and Seizure Safety Checklist
  • Children’s SUDEP & Seizure Safety Checklist
Get Involved
  • Donate
  • Our events & campaigns
  • How you can fundraise
  • Regular giving
  • Leave a gift in your will
  • Volunteer for us
About SUDEP Action
  • About SUDEP Action
  • Latest news
  • Annual reports
  • Our strategy
  • Contact
  • Privacy policy & cookies
©2025 SUDEP Action
|
SUDEP Action, registered charity 1164250 (England & Wales), SC047223 (Scotland). Epilepsy Bereaved (founded 1995) is part of SUDEP Action.
SUDEP Action, registered
charity 1164250 (England & Wales), SC047223 (Scotland).
Epilepsy Bereaved (founded 1995) is part of SUDEP Action.
Bespoke website by mwb-agency.com

© 2025 SUDEP Action | SUDEP Action, registered

charity 1164250 (England & Wales), SC047223 (Scotland).

Epilepsy Bereaved (founded 1995) is part of SUDEP Action.

Bespoke website by mwb-agency.com

We use cookies and other tracking technologies to improve your browsing experience on our website, to analyse our website traffic, and to understand where our visitors are coming from.

I accept
I don't accept
Learn more