Contact confirmation - SUDEP Action

Thank you for contacting us.

We will get in touch with you shortly.

Latest news

Find out what’s been happening within the charity in recent months and read more about our work and the projects we’re involved in.

General

Stephen Brown: A true SUDEP Action champion

Stephen has now stepped down as a trustee but will continue to serve SUDEP Action as a vice-president.

General

40+ MPs sign letter to Health Sec to end meds shortages

MPs call on Health Sec Wes Streeting to end the misery endured by epilepsy sufferers due to struggles in getting life-saving medications.

General

National medicines system must prioritise those at risk of sudden death

By Jane Hanna OBE, SUDEP Action Director of Policy & Influencing

General

‘We could not have coped with the awful inquest process alone’

SUDEP Action is continuing to work with the family of Charlie Marriage, who died from SUDEP in June 2021 after spending two days trying to get his anti-seizure medication via NHS 111, his health centre and local pharmacy.

General

Bereaved mother says NHS111 still putting lives at risk

His mother Henrietta says the systems in place – meant to protect her son – failed him. She believes there are still major problems with NHS111, which are putting the lives of others at risk.

Team

SUDEP Action delighted to welcome Dan as Interim CEO

Dan joins the team as cover for Sammy Ashby, who will go on maternity leave in February.