General
Action needed to bring epilepsy out of the shadows
Clive’s family fought for a review, which led to the creation of the Clive Treacey Safety Checklist
SUDEP Action
News
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GeneralStop SUDEP: A mother’s fight for justice for her daughter
Megan’s mother Alison shares her story.
GeneralSUDEP Action shares risk studies at ILAE Conference
Research findings shared at major epilepsy conference.
GeneralFrom the CEO
Charity updates from our CEO Sammy Ashby
FundraisingFrom Andover to Florence: a virtual walk in memory of Loki
Darren takes on epic walks in memory of grandson
GeneralMajor new research project to reveal the true lifetime cost of epilepsy
Epilepsy Research Institute and SUDEP Action join forces for major research into the cost of a death from epilepsy.
GeneralHelp shape the future of SUDEP research
The National Institute for Health and Care Research (NIHR) is inviting people to suggest health and care research questions that they think need answering.
FundraisingThe more people who get involved, the louder our voice becomes
Natalie takes on a sponsored paraglide in memory of her sister Kathryn
FundraisingTaking to the skies in memory of Erin
Emma Taylor wants people to know about SUDEP and to understands the risks associated with epilepsy.
Fundraising‘Andy is the inspiration through every step’
Kim Mcentee says she’s proud to represent SUDEP Action on the Great North Run.
For one-to-one support after an epilepsy death contact our support team today
We provide the only support line for people bereaved by an epilepsy death and offer access to qualified counselling. Our dedicated support team has a special interest in, and understanding of, sudden and traumatic death.
