General
New MHRA guidance increases risk for people with epilepsy
We believe the lack of MHRA transparency and consultation on the Prevent Programme is outside the range of reasonable and acceptable.
News
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GeneralNew research: The impact of Covid-19 on people with epilepsy
SUDEP Action has contributed to a new research paper on the impacts of Covid-19 on people with epilepsy.
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GeneralCoalition of orgs ask for urgent meeting with new Health Secretary
SUDEP Action has put its name to a letter urging Wes Streeting to meet to discuss critical medicine supply issues.
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GeneralWe all need to ‘be more Hannah’
A family is urging each other to ‘be more Hannah’ in memory of Hannah Smith, who died last year from SUDEP.
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GeneralOur Help for Hope pledge – ask your MP!
If elected, I will meet with SUDEP Action to talk about rising preventable deaths and harms to people with epilepsy.
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GeneralPurple hearts for SMPs & Glasgow Uni to be lit purple!
Jessica Johnston died suddenly and unexpectedly from epilepsy in January 2022, just 20 years old.
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GeneralAnne’s Great South Run triumph
For six years, Anne O’Neill has completed the Great South Run in memory of her sister Brigid who sadly suffered a fatal epileptic seizure in November 2001.
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GeneralNew project to reduce epilepsy risk in Ireland
SUDEP Action has begun work with Epilepsy Ireland to introduce the SUDEP and Seizure Safety Checklist to Ireland.
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Sudden Child Deaths: The Search for Answers
SUDEP Action was disappointed with aspects of the BBC Panorama programme Sudden Child Deaths: The Search for Answers.
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People with epilepsy deserve better access to medicines
SUDEP Action is calling for more to be done to ensure people with epilepsy have better access to lifesaving medicines.
