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World-leading epilepsy specialist becomes SUDEP Action trustee
SUDEP Action is delighted to welcome Professor Ley Sander as a new charity trustee renowned as one of the top epilepsy specialists in the world.
News
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CampaignsOxfordshire MPs support SUDEP Action on Purple Day
The Oxfordshire MPs supporting SUDEP Action are also campaigning to improve services in the county to help families and clinicians.
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CampaignsTower lights up for woman whose death saved eight lives
On Wednesday, March 26, just over two years after she died, Jessica’s parents have arranged for Blackpool Tower to be lit up in purple in her memory.
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General‘Great examples of brilliance’
Professor Mike Kerr is now a Vice President of the charity, having recently stepped down as a Trustee,
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GeneralStephen Brown: A true SUDEP Action champion
Stephen has now stepped down as a trustee but will continue to serve SUDEP Action as a vice-president.
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General40+ MPs sign letter to Health Sec to end meds shortages
MPs call on Health Sec Wes Streeting to end the misery endured by epilepsy sufferers due to struggles in getting life-saving medications.
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GeneralNational medicines system must prioritise those at risk of sudden death
By Jane Hanna OBE, SUDEP Action Director of Policy & Influencing
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General‘We could not have coped with the awful inquest process alone’
SUDEP Action is continuing to work with the family of Charlie Marriage, who died from SUDEP in June 2021 after spending two days trying to get his anti-seizure medication via NHS 111, his health centre and local pharmacy.
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GeneralBereaved mother says NHS111 still putting lives at risk
His mother Henrietta says the systems in place – meant to protect her son – failed him. She believes there are still major problems with NHS111, which are putting the lives of others at risk.
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GeneralNorth Thames Paediatric Network sign up for the Children’s Checklist
North Thames Paediatric Network sign up to the Paediatric SUDEP and Seizure Safety Checklist.