Campaigns
‘New Charlie Cards will save lives’ says Charlie’s Mother
Charlie's mother; Henrietta Hastings, and the coroner, say the systems in place, which were meant to protect her son, failed him.
News
-
-
General‘Together, as a movement, we were hard to ignore’
Catherine and Chris’s son Matthew died suddenly and unexpectedly in November 1991. He was just 21 and apart from having epilepsy, otherwise fit and healthy.
-
GeneralNew publication identifies priorities for SUDEP research
SUDEP Action has contributed to a new research paper published in Epilepsy & Behavior.
-
GeneralWhy SUDEP Action matters to me
Patricia Odd shares her experience of finding SUDEP Action after losing her daughter Katy.
-
General2002: How we took epilepsy deaths out of the shadows
Still widely cited and used today, the National Sentinel Clinical Audit of Epilepsy-Related Deaths found systemwide failures in the provision of epilepsy care.
-
EventsSUDEP Action remembers those who have lost their lives to epilepsy with London Memorial Service
The service was attended by over 200 people who travelled from all parts of the UK to remember and pay tribute to their loved ones.
-
FundraisingRunning the London Marathon in memory of Charlotte Iceton
“I've never been involved in anything like that. You know, everyone just supporting you.”
-
General1995: How we made political leaders listen
-
General“People make all of the difference, it’s very caring here”
Paul Marcham, Finance Manager retires after 8 years at SUDEP Action
-
GeneralSUDEP Action at 30: It began with five women wanting answers