Campaigns
Shoelaces: A personal story of loss and perseverance
Roy Grimes has written a book of his experiences called Shoelaces following the death of his brother Nathan.
News
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GeneralOmbudsman says health board failed vulnerable epilepsy patients
A complaint brought by seven families – who had been using a specialist service that stopped abruptly in June 2021 – has been upheld by the Ombudsman.
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Fundraising“Never give up!” 3 x 3 peaks climbed in memory of Martin
Group climbs to the summit of all nine mountains in memory of Martin Morgan.
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CampaignsArtist Rachel brings colour to our 30 for 30 challenge
Trustee Rachel Shah is taking on the 30 for 30 challenge
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Campaigns30 for 30 the Interim CEO’s perspective
Dan Freshwater explains why he is taking part in a 30 for 30 challenge
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GeneralWhy I am donating regularly to SUDEP Action
“The short answer for why I am donating regularly and why I have helped raise over 7k for SUDEP Action is because the day after my wife, Sarah, died was the first time I heard of SUDEP."
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GeneralExciting opportunity launched for new research project
Applications invited for research award of up to £300k over one to four years.
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FundraisingSnowdon climb in memory of Jasmine MacArthur
Jasmine MacArthur died due to epilepsy in March at just 16 years old.
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FundraisingDaughter of former Trustee runs the London Marathon in memory of her sister
Kristen passed away in 1999 at the age of 25 and was eight months pregnant
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FundraisingNine peaks in memory of Martin Morgan
Martin had been diagnosed with epilepsy when he was around 8 years old and hadn’t had a known seizure for 15 years before he passed away.