General
Paul Warren joins SUDEP Action Board
New trustee Paul lost his sister to SUDEP in 2019.
News
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GeneralForever Alive: Natalia’s story told on London stage
Lilianna performs play in memory of Natalia.
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GeneralHow a letter to his late brother grew into a worldwide mission
Fraser Morton's brother died of SUDEP, aged 19. Now. Fraser wants to reshape how epilepsy is understood.
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Fundraising“It took losing Lucy for us to even learn about SUDEP”
Over £7,000 raised in memory of Lucy Grant in Mighty Stride Kiltwalk.
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GeneralHealth Board given 28 days to clarify SUDEP risk plans
Neither Megan nor her family were properly informed of her risk of death.
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GeneralMore Than a Conclusion: Our Ongoing Commitment to Megan’s Family and Clinical Change
Megan was 17 weeks pregnant when she died in June 2022 of SUDEP – Sudden Unexpected Death in Epilepsy.
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FundraisingGood luck to our London Marathon runners
This weekend on Sunday 26th April is the London Marathon 2026, where four supporters will be taking part for SUDEP Action.
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GeneralThe power of nature: A bereaved mother’s story
Sophie Pierce’s memoir The Green Hill: Letters to a Son, is coming out in paperback.
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GeneralCommons debate highlights need to tackle failures in risk care
MP Olly Glover leads House of Commons debate on SUDEP and epilepsy risk communication.
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GeneralLiving with epilepsy: The hidden reality
Madeline Bolton-Smith shares an extract of her book 'Diary of an Epileptic: The Hidden Reality'